Mora-Lopez Gerard, Berenguer-Poblet Marta, Berbis-Morelló Carme, Albacar-Rioboo Nuria, Montesó-Curto Pilar, Aguaron-García María Jesús, Ferré-Grau Carme
Department of Nursing, Faculty of Nursing, University of Rovira i Virgili, Tarragona, Spain.
Hospital Universitari Joan XXIII de Tarragona, Tarragona, Spain.
Front Psychol. 2022 Apr 4;13:854108. doi: 10.3389/fpsyg.2022.854108. eCollection 2022.
After the end of their time as a caregiver, former caregivers have needs and feelings that have been subject to little study to date. The aim of the study is to determine and analyse the feelings, perceptions and practices of former caregivers in the reconstruction of their daily lives. This is a qualitative study based on the Grounded Theory developed by Charmaz. The study involved 14 former caregivers who had cared for their relative for more than 2 years and who had stopped caring for them more than 2 years previously. Fourteen in-depth interviews were conducted and data were collected over 13 months between 2015 and 2017. Data were analysed using the Grounded Theory Method. In addition, this study was approved by the ethics committee of the Institut Universitari d'Investigació en Atenció Primària Jordi Gol. The former caregiver experiences a transition, which begins in the days before the death of their relative and may continue for more than 3 years. Three critical moments in the post-caring transition were found: (1) the post-caring emptiness; (2) the end of the period as a caregiver; and (3) the movement towards a new life. Family and professional support is needed during this transition. Former caregivers experience a transition in the rebuilding of their daily lives; furthermore, former caregivers may be a source of support for other caregivers, which is linked to positive mental health factors. Healthcare organisations need to acknowledge the emotional, psychosocial and psychological health of former caregivers.
在结束照护者生涯后，曾经的照护者有一些需求和感受，而迄今为止这些需求和感受几乎未得到研究。本研究的目的是确定并分析曾经的照护者在重建日常生活中的感受、认知和行为。这是一项基于Charmaz所发展的扎根理论的定性研究。该研究纳入了14名曾经的照护者，他们曾照料亲属超过2年，且在2年多以前就已不再照料。研究进行了14次深度访谈，并于2015年至2017年期间的13个月内收集了数据。数据采用扎根理论方法进行分析。此外，本研究获得了Jordi Gol初级卫生保健大学研究所伦理委员会的批准。曾经的照护者经历了一个转变过程，这个过程始于其亲属去世前的日子，可能会持续超过3年。研究发现了照护后转变过程中的三个关键阶段：（1）照护后的空虚感；（2）照护期的结束；（3）迈向新生活的转变。在这个转变过程中需要家庭和专业支持。曾经的照护者在重建日常生活中经历着转变；此外，曾经的照护者可能是其他照护者的支持来源，这与积极的心理健康因素相关。医疗保健机构需要关注曾经的照护者的情绪、心理社会和心理健康状况。
