Assistant Professor, Department of Family Medicine, Iuliu Hatieganu University of Medicine and Pharmacy, Faculty of Medicine, Cluj-Napoca, Romania.
Professor, Faculty of Health and Medicine, Lancaster University, Lancaster, UK.
Int J Palliat Nurs. 2022 Feb 2;28(2):80-99. doi: 10.12968/ijpn.2022.28.2.80.
A primary caregiver shares the illness experience of the patient and undertakes vital care work, alongside managing the patient's emotions, and is actively involved in care process without being paid. When faced with the palliative care patient's needs, caregivers are affected on multiple levels (physical, psychological and socio-economic), thereby experiencing a moderate or severe burden of care.
To identify assessment instruments for the burden of care for family caregivers that are suitable to be used in clinical practice.
A narrative review was conducted using an electronic search in Pubmed, PsychINFO, CINAHL of articles published in English between 2009-2019, using the search terms: 'caregiver/family, caregiver/carer and burden and palliative care/hospice/end of life'. An assessment grid was developed to appraise the clinical use of identified instruments.
Of the 568 articles identified, 40 quantitative studies were selected using 31 instruments to measure the caregiver burden of cancer, noncancer and terminally ill patients. Most instruments 23 (74.11%) evaluate the psycho-emotional and, 22 (70.96%) the social domain, 12 instruments (38.7%) focused on the physical domain, three (9.67%) on the spiritual field and six instruments (19.35%) on economic aspects. For the multidimensional instruments, the assessment grid scored highest for the Burden Scale for Family Caregiver (BSFC).
The BSFC is the tool that seems to meet the most requirements, being potentially the most useful tool in clinical practice.
初级照顾者与患者共同经历疾病，承担重要的护理工作，同时管理患者的情绪，并在没有报酬的情况下积极参与护理过程。当面临姑息治疗患者的需求时，照顾者在多个层面（身体、心理和社会经济）受到影响，因此会经历中度或重度的照顾负担。
确定适合在临床实践中使用的家庭照顾者照顾负担评估工具。
使用电子搜索在 Pubmed、PsychINFO 和 CINAHL 中检索 2009 年至 2019 年间发表的英文文章，使用的搜索词为：“caregiver/family、caregiver/carer 和 burden 和 palliative care/hospice/end of life”。开发了一个评估网格来评估确定的工具在临床使用中的情况。
在 568 篇文章中，选择了 40 项定量研究，使用 31 种工具来衡量癌症、非癌症和终末期患者的照顾者负担。大多数工具（74.11%）评估心理-情感领域，22 种（70.96%）评估社会领域，12 种（38.7%）专注于身体领域，3 种（9.67%）专注于精神领域，6 种（19.35%）专注于经济领域。对于多维工具，照顾者负担量表（BSFC）的评估网格得分最高。
BSFC 似乎满足了大多数要求，是临床实践中最有用的工具之一。
