School of Nursing and Midwifery, Queen's University Belfast, Belfast, United Kingdom.
PLoS One. 2024 May 9;19(5):e0302525. doi: 10.1371/journal.pone.0302525. eCollection 2024.
Patients with end stage kidney disease (ESKD) receiving haemodialysis experience multiple symptoms, which can present physical and emotional challenges for both patients and their informal caregivers. Caregivers can experience anxiety, depression, and social isolation negatively impacting their overall wellbeing and resulting in caregiver burden. The needs of this group of caregivers have been largely neglected, with little emphasis placed on supportive interventions that might assist and support them in their caring role.
The aim of this study Is to explore the unmet needs and experiences of caregivers of patients with ESKD receiving haemodialysis, and to determine the components of a supportive intervention.
A qualitative study using semi-structured interviews (n = 24) with informal caregivers. An interpretive qualitative framework was employed to generate a rich understanding of the unmet needs and experiences of caregivers. Data was analysed using thematic analysis. Interviews were transcribed verbatim and data management was assisted through NVIVO version 11.
SETTING/PARTICIPANTS: Twenty-four informal caregivers were purposively recruited from two haemodialysis settings within Northern Ireland.
Three themes were identified: (1) The negative impact of distress, anxiety, and isolation on caregivers due to their caregiving responsibilities (2) Inadequate information and knowledge about the complexities of renal care (3) The benefits of spiritual beliefs, stress management and peer support in relieving the caregiving burden.
Caregivers of patients with ESKD receiving haemodialysis are at increased risk of physical and psychological distress and burden arising from their caregiving role. The unpredictable nature of ESKD and haemodialysis treatment negatively impacts the caregiver experience and adds to the challenges of the role. The information needs of caregivers are not always adequately met and they subsequently lack appropriate knowledge, skills, and guidance to assist them in their caregiving role. Supportive interventions are essential for caregivers to enhance their capability to deliver effective care and improve their quality of life.
接受血液透析的终末期肾病 (ESKD) 患者会经历多种症状，这给患者及其非专业护理人员带来了身体和情感上的挑战。护理人员可能会经历焦虑、抑郁和社会孤立，从而对他们的整体幸福感产生负面影响，并导致护理人员负担过重。这一群体的护理人员的需求在很大程度上被忽视了，很少有人关注可能有助于支持和帮助他们在护理角色中的支持性干预措施。
本研究旨在探讨接受血液透析的 ESKD 患者的非专业护理人员的未满足需求和体验，并确定支持性干预措施的组成部分。
采用半结构式访谈（n=24）对非专业护理人员进行的定性研究。采用解释性定性框架来深入了解护理人员的未满足需求和体验。使用主题分析对数据进行分析。访谈逐字转录，通过 NVIVO 版本 11 进行数据管理。
地点/参与者：24 名非专业护理人员是从北爱尔兰的两个血液透析环境中通过目的性抽样招募的。
确定了三个主题：（1）由于护理责任，护理人员因痛苦、焦虑和孤立而产生的负面影响；（2）对肾脏护理复杂性的信息和知识不足；（3）精神信仰、压力管理和同伴支持在缓解护理负担方面的好处。
接受血液透析的 ESKD 患者的非专业护理人员因护理角色而面临更大的身体和心理压力和负担风险。ESKD 和血液透析治疗的不可预测性质对护理人员的体验产生负面影响，并增加了角色的挑战。护理人员的信息需求并不总是得到充分满足，因此他们缺乏适当的知识、技能和指导，以帮助他们履行护理职责。支持性干预措施对于护理人员增强提供有效护理的能力和提高他们的生活质量至关重要。
