Loi Samantha M, Flynn Libby, Cadwallader Claire, Stretton-Smith Phoebe, Bryant Christina, Baker Felicity A
Department of Psychiatry, The University of Melbourne, Parkville, VIC 3052, Australia.
Neuropsychiatry, John Cade Level 2, Royal Melbourne Hospital, Parkville, VIC 3050, Australia.
Brain Sci. 2022 Apr 15;12(4):503. doi: 10.3390/brainsci12040503.
Psychosocial interventions targeting the specific needs of people affected by younger-onset dementia are lacking. Younger-onset dementia refers to dementia where symptom onset occurs at less than 65 years old. Because of its occurrence in middle age, the impact on spouses is particularly marked and dyadic-based interventions are recommended. Music And Psychology & Social Connections (MAPS) is a novel online intervention, informed by the theory of adaptive coping by Bannon et al. (2021) for dyads affected by younger-onset dementia. MAPS combines therapeutic songwriting, cognitive behaviour therapy, and a private social networking group that focuses on the dyads. This will be a randomised controlled trial with a waitlist control. The primary aims are to assess whether MAPS improves depressive, anxiety, and stress symptoms in caregivers, with secondary aims to assess whether MAPS improves depressive symptoms in people with younger-onset dementia. The trial also aims to assess dyadic social connectedness; caregiver coping skills; and neuropsychiatric symptoms in people with younger-onset dementia. We will recruit 60 dyads to participate in a group-based weekly online program for 8 weeks facilitated by a credentialed music therapist and psychologist. Sessions 1 and 8 will include both caregivers and people with younger-onset dementia and Sessions 2-7 will involve separate group sessions for caregivers and those with dementia. There will be focus groups for qualitative feedback. Due to its online administration, MAPS has the potential to reach many dyads affected by younger-onset dementia.
针对早发性痴呆症患者特定需求的社会心理干预措施尚不存在。早发性痴呆症是指症状发作年龄小于65岁的痴呆症。由于其发病于中年，对配偶的影响尤为显著，因此建议采用基于二元组的干预措施。音乐与心理及社会联系（MAPS）是一种新型的在线干预措施，其依据班农等人（2021年）的适应性应对理论，针对受早发性痴呆症影响的二元组。MAPS结合了治疗性歌曲创作、认知行为疗法以及一个专注于二元组的私人社交网络群组。这将是一项设有等待名单对照组的随机对照试验。主要目的是评估MAPS是否能改善照料者的抑郁、焦虑和压力症状，次要目的是评估MAPS是否能改善早发性痴呆症患者的抑郁症状。该试验还旨在评估二元组的社会联系；照料者的应对技能；以及早发性痴呆症患者的神经精神症状。我们将招募60个二元组参与一个由专业音乐治疗师和心理学家主持的为期8周的基于小组的每周在线项目。第1和第8次课程将包括照料者和早发性痴呆症患者，第2至7次课程将分别为照料者和痴呆症患者安排小组课程。将设有焦点小组以获取定性反馈。由于其在线管理方式，MAPS有潜力惠及许多受早发性痴呆症影响的二元组。
