Health and Sport, University of Stirling, Stirling, UK
Biomedical Informatics, University of Nebraska Omaha, Omaha, Nebraska, USA.
Postgrad Med J. 2021 Sep;97(1151):598-604. doi: 10.1136/postgradmedj-2020-138517. Epub 2020 Sep 3.
People with early-onset dementia have a potential risk of being marginalised with respect to care and social support as a result of the blame and stigma associated with their condition, and because they have reduced access to treatment options and postdiagnostic care. The limited use of community services and the resulting psychological implications are two key issues facing the group and their caregivers. Early diagnosis, behavioural therapies such as talking therapy, meaningful Montessori activities and friendly community services tailored to meet the needs of people with early-onset dementia are relationship-centred care approaches that could be implemented in practice, using the 'Senses Framework' to promote an enriched supportive environment of care with zero tolerance for marginalisation and discriminatory tendencies. Support for caregivers is invaluable in controlling behavioural changes in people with early-onset dementia. A combined approach involving pharmacological and behavioural interventions could be used in severe mood and behavioural changes.
早发性痴呆患者由于与病情相关的指责和耻辱感,以及治疗选择和诊断后护理机会减少,面临被边缘化的潜在风险,在照顾和社会支持方面。该群体及其护理人员面临的两个关键问题是社区服务的使用有限以及由此产生的心理影响。早诊断、行为疗法,如谈话疗法、有意义的蒙台梭利活动以及针对早发性痴呆患者需求的友好社区服务,都是以关系为中心的护理方法,可以在实践中使用“感官框架”来促进支持性的丰富护理环境,零容忍边缘化和歧视倾向。为早发性痴呆患者的护理人员提供支持对于控制他们的行为变化非常重要。在严重的情绪和行为变化中,可以采用药物和行为干预相结合的方法。