患有健康问题儿童的以患者和家庭为中心的护理差异。
Disparities in Patient- and Family-Centered Care Among Children With Health Conditions.
作者信息
Kindratt Tiffany B, Lark Payton, Ray Madison, Brannon Grace Ellen
机构信息
Public Health Program, Department of Kinesiology, College of Nursing and Health Innovation, University of Texas at Arlington, Arlington, TX, USA.
Department of Communication, College of Liberal Arts, University of Texas at Arlington, Arlington, TX, USA.
出版信息
J Patient Exp. 2022 Apr 7;9:23743735221092494. doi: 10.1177/23743735221092494. eCollection 2022.
The objective of this study was to estimate and compare the prevalence of patient- and family-centered cae (PFCC) received by children in the United States (US) with chronic and developmental health conditions and determine associations between the presence of the conditions and parents' perceptions of PFCC after controlling for covariates. Linked data from the 2012-2016 National Health Interview Survey (NHIS) and 2013-2017 Medical Expenditure Panel Survey (MEPS) (n = 7,835) were tested using crude and adjusted logistic regression procedures. Parents of children with developmental delays had 32% lower odds (95% CI = 0.51-0.90) of reporting their healthcare provider always exhibited all PFCC qualities. Parents of children with allergies and developmental delays had 26% (95% CI = 0.58-0.95) and 42% (95% CI = 0.42-0.80) lower odds of reporting their provider always listened carefully compared to parents whose children did not. Findings demonstrate the importance of continuous training for providers to tailor communication for families who have children with health conditions.
本研究的目的是评估和比较美国患有慢性和发育性健康状况的儿童接受以患者和家庭为中心的照护（PFCC）的患病率，并在控制协变量后确定这些状况的存在与父母对PFCC的认知之间的关联。使用原始和校正逻辑回归程序对2012 - 2016年国家健康访谈调查（NHIS）和2013 - 2017年医疗支出面板调查（MEPS）的关联数据（n = 7835）进行了检验。发育迟缓儿童的父母报告其医疗服务提供者始终具备所有PFCC特质的几率低32%（95%CI = 0.51 - 0.90）。与孩子没有过敏和发育迟缓的父母相比，患有过敏和发育迟缓儿童的父母报告其医疗服务提供者总是认真倾听的几率分别低26%（95%CI = 0.58 - 0.95）和42%（95%CI = 0.42 - 0.80）。研究结果表明，持续培训医疗服务提供者以便为有健康问题儿童的家庭量身定制沟通方式非常重要。
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