Nigro Olga, Sironi Giovanna, Ferrari Andrea, Tinè Gabriele, Infante Gabriele, Barretta Francesco, Silva Matteo, Clerici Carlo Alfredo, Chiaravalli Stefano, Schiavello Elisabetta, Biassoni Veronica, Podda Marta, Meazza Cristina, Spreafico Filippo, Casanova Michela, Terenziani Monica, Luksch Roberto, Massimino Maura
Pediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, Italy.
Clinical Epidemiology and Trial Organization Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, 20133 Milan, Italy.
Children (Basel). 2022 Apr 13;9(4):554. doi: 10.3390/children9040554.
(1) Background: When the COVID-19 pandemic arrived, changes had to be made to several management aspects at our Pediatric Oncology Unit. We investigated how the families perceived these changes. (2) Methods: Two questionnaires were developed at the Pediatric Oncology Unit of the Istituto Nazionale dei Tumori in Milan in order to explore how the pandemic had affected the experience of patients who had been or were being treated at our hospital, as well as their families. These questionnaires were administered to three groups of individuals. (3) Results: Between July and October 2020, 120 questionnaires were administered to parents of patients. The impact of school closures and the impossibility of attending sports and social activities outside the hospital were regarded as important, and it was reported that 77.5% of parents judged social distancing to have affected their children. Regarding the changes introduced in the management of the ward and outpatient clinic, most parents' opinions were positive. Differences in the opinions expressed by Groups 2 and 3 were statistically significant on the topics of relationships in the ward and staff workload. The aspect most negatively affected by the pandemic was the support that patients' parents were able to give each other. Regardless of whether patients were treated before the pandemic or after the first lockdown, all parents indicated strong degrees of satisfaction with the care received and the organizational arrangements. (4) Conclusions: The results of our study point us in the right direction to further improve our daily work and better respond to the needs of our patients and their families.
(1) 背景：新冠疫情来袭时，我们儿科肿瘤病房的多个管理方面不得不做出改变。我们调查了患儿家庭对这些变化的看法。(2) 方法：米兰国立肿瘤研究所儿科肿瘤病房设计了两份问卷，以探究疫情如何影响在我院接受治疗或正在接受治疗的患者及其家庭的体验。这些问卷被发放给三组人员。(3) 结果：2020年7月至10月期间，向患者家长发放了120份问卷。学校停课以及无法参加医院外的体育和社交活动的影响被认为很重要，据报告，77.5%的家长认为社交距离措施对其子女产生了影响。关于病房和门诊管理方面的变化，大多数家长的意见是积极的。第2组和第3组在病房关系和工作人员工作量等话题上表达的意见存在统计学显著差异。疫情影响最负面的方面是患者家长之间能够给予的支持。无论患者是在疫情之前还是在首次封锁之后接受治疗，所有家长都对所接受的护理和组织安排表示高度满意。(4) 结论：我们的研究结果为我们进一步改进日常工作、更好地满足患者及其家庭的需求指明了正确方向。
