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共同构建意义对于可持续的知识转化和健康素养至关重要。

The importance of shared meaning-making for sustainable knowledge translation and health literacy.

机构信息

Department of Transplantation Medicine, Oslo University Hospital, Oslo, Norway.

Department of Interdisciplinary Health Sciences, Faculty of Medicine, University of Oslo, Oslo, Norway.

出版信息

J Eval Clin Pract. 2022 Oct;28(5):828-834. doi: 10.1111/jep.13690. Epub 2022 Apr 24.

Abstract

The aim of the present paper is to describe and discuss how recent theories about translation, bridging medical and humanistic understandings of knowledge translation, in the medical humanities can bring about a new understanding of health literacy in the context of patient education. We argue that knowledge translation must be understood as active engagement with contextual meaning, considering the understandings, interpretation, and expertise of both patient and health care provider (deconstruction of the distinction between biomedical and cultural knowledge). To illustrate our points, we will describe the case of Jim, a kidney transplant recipient who received standard patient education but lost the graft (the new kidney). If we apply Kristeva's view to this context, graft function is not merely biology but a complex biocultural fact. In this perspective, graft function is seen as a phenomenon that embraces translation between health as a biomedical phenomenon and healing as lived experience, and that opens for shared meaning-making processes between the patient and the health care provider. In Jim's case, this means that we need to rethink the approach to patient education in a way that encourages the patient's idiosyncratic way of thinking and experiencing, and to transform health information into a means for sustaining Jim's singular life - not biological life "in general." The patient education programme did not take into consideration the singularities of Jim's biographical temporality, with its changes in everyday life, priorities, attitudes, and values. Hence, we claim that health literacy should involve a simultaneous interrogation of the patients and the health professional's constructions of knowledge.

摘要

本文旨在描述和讨论最近关于翻译的理论,即弥合医学和人文理解之间的知识转化鸿沟,如何在医学人文学科中为患者教育背景下的健康素养带来新的理解。我们认为,知识转化必须被理解为积极参与语境意义,考虑到患者和医疗保健提供者的理解、解释和专业知识(解构生物医学知识和文化知识之间的区别)。为了说明我们的观点,我们将描述 Jim 的案例,他是一名肾移植受者,接受了标准的患者教育,但移植肾却失去了功能。如果我们将 Kristeva 的观点应用于这一背景,移植肾的功能不仅仅是生物学的,而是一个复杂的生物文化事实。从这个角度来看,移植肾的功能被视为一种现象,它包含了健康作为生物医学现象和治疗作为生活体验之间的翻译,并且为患者和医疗保健提供者之间的共同意义创造过程开辟了道路。在 Jim 的案例中,这意味着我们需要以一种鼓励患者独特思维和体验的方式重新思考患者教育的方法,并将健康信息转化为维持 Jim 独特生活的一种手段——而不是“一般”的生物学生活。患者教育计划没有考虑到 Jim 传记时间的特殊性,包括日常生活、优先事项、态度和价值观的变化。因此,我们声称健康素养应该同时质疑患者和医疗专业人员对知识的构建。

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本文引用的文献

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Cultural crossings of care: An appeal to the medical humanities.护理中的文化交融:对医学人文学科的呼吁。
Med Humanit. 2018 Mar;44(1):55-58. doi: 10.1136/medhum-2017-011263. Epub 2017 Sep 21.
6
Expanding the knowledge translation metaphor.拓展知识转化的隐喻。
Health Res Policy Syst. 2017 Mar 13;15(1):19. doi: 10.1186/s12961-017-0184-x.
7
Unpacking the process of interpretation in evidence-based decision making.剖析循证决策中的阐释过程。
J Eval Clin Pract. 2015 Jun;21(3):529-31. doi: 10.1111/jep.12362. Epub 2015 Apr 7.
8
B-cell regulation and its application to transplantation.B细胞调节及其在移植中的应用。
Transpl Int. 2014 Feb;27(2):117-28. doi: 10.1111/tri.12160. Epub 2013 Aug 4.
10
Shared decision making: a model for clinical practice.共同决策:一种临床实践模式。
J Gen Intern Med. 2012 Oct;27(10):1361-7. doi: 10.1007/s11606-012-2077-6. Epub 2012 May 23.

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