Eklund Rakel, Lövgren Malin
7643Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, Stockholm, Sweden.
Department of Neuroscience, National Centre for Disaster Psychiatry, 8097Uppsala University, Uppsala, Sweden.
J Pediatr Hematol Oncol Nurs. 2022 May-Jun;39(3):143-154. doi: 10.1177/27527530221068423. Epub 2022 Feb 17.
There are few scientifically evaluated psychosocial interventions in pediatric oncology, despite the needs for families. The family-based psychosocial intervention "The Family Talk Intervention" (FTI) has shown promising results in other care contexts and was therefore pilot-tested in pediatric oncology. In this study, we examined the experiences of participating in FTI from ill children's perspectives regarding feasibility and potential effects. This pilot study involved 26 families in pediatric oncology that had participated in FTI. The paper is focused on those ill children who answered surveys (n = 19) and/or participated in interviews (n = 11) when FTI had ended. Data were analyzed with descriptive statistics and thematic analysis. For most ill children, FTI came at the right time, included a reasonable number of meetings, and the length of the meetings was appropriate. The children felt listened to and understood by the interventionists and almost all children reported that FTI had helped them in some way. The children's perceptions indicated that FTI improved communication within the family and strengthened family relations. Children reported that the parents and their siblings seemed to feel better after participation and became more understanding. The findings of this pilot study indicated that a full-scale study could be valuable from the ill children's perspective, as FTI was reported as feasible and had positive effects. The findings showed that FTI gave families an opportunity to open up communication about the illness, adjust their behaviors, and strengthen family relationships. ClinicalTrials.gov Identifier NCT03650530.
尽管儿科肿瘤患者家庭有需求，但目前经过科学评估的心理社会干预措施很少。基于家庭的心理社会干预措施“家庭谈话干预”（FTI）在其他护理环境中已显示出有希望的结果，因此在儿科肿瘤领域进行了试点测试。在本研究中，我们从患病儿童的角度考察了参与FTI在可行性和潜在效果方面的体验。这项试点研究涉及26个参与了FTI的儿科肿瘤患者家庭。本文关注的是那些在FTI结束时回答了调查问卷（n = 19）和/或参与了访谈（n = 11）的患病儿童。数据采用描述性统计和主题分析进行分析。对于大多数患病儿童来说，FTI开展的时机合适，会议次数合理，会议时长也适宜。孩子们感到干预人员倾听并理解了他们，几乎所有孩子都报告称FTI在某种程度上帮助了他们。孩子们的看法表明，FTI改善了家庭内部的沟通，加强了家庭关系。孩子们报告说，父母和兄弟姐妹在参与之后似乎感觉更好，也变得更善解人意了。这项试点研究的结果表明，从患病儿童的角度来看，全面研究可能很有价值，因为FTI被报告为可行且具有积极效果。研究结果表明，FTI为家庭提供了一个机会，使其能够就疾病展开沟通、调整行为并加强家庭关系。ClinicalTrials.gov标识符：NCT03650530。
