• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

父母对儿科肿瘤家庭谈话干预的长期留存情况

Parents' Long-Term Retention of the Family Talk Intervention in Pediatric Oncology.

作者信息

Ivéus Kerstin, Holm Maja, Kreicbergs Ulrika, Udo Camilla, Lövgren Malin

机构信息

Department of Healthcare Science, Marie Cederschiöld University, Stockholm, Sweden.

Department of Nursing Sciences, Sophiahemmet University, Stockholm, Sweden.

出版信息

J Pediatr Hematol Oncol Nurs. 2025 May-Jun;42(3):120-128. doi: 10.1177/27527530251342151. Epub 2025 Jul 17.

DOI:10.1177/27527530251342151
PMID:40676901
Abstract

Despite the significant psychosocial challenges faced by families in pediatric oncology, there is a notable lack of long-term scientific evaluations of family-based psychosocial interventions that address the needs of the entire family. This study examines parental retention 4-5 years after participating in a psychosocial family-based intervention family talk intervention (FTI). FTI consists of 6-11 manual-based meetings. The main goals of FTI are to facilitate family communication about illness-related topics, support parenting, and make the children's needs visible. This qualitative study included interviews from 30 parents from 18 families who had participated in FTI 4-5 years earlier. Data were analyzed using content analysis. Parents reported that they still used several of the strategies they had learned during FTI that helped them to continue to share their thoughts and emotions and maintain an open communication within the family, which reduced the family's stress. Parents also used strategies that helped them to put the spotlight on the children and to increase the democracy in the family. Their participation provided a springboard to participate in new contexts outside the hospital where they share their difficulties with other parents. Long-term evaluation is crucial for understanding an intervention's sustainability over time. The psychosocial intervention, FTI, remained beneficial for families even 4-5 years after their participation, with the strategies learned during FTI demonstrating long-term persistence and enhancing parents' resilience in coping with adverse life events.

摘要

尽管儿科肿瘤领域的家庭面临着重大的社会心理挑战,但针对满足整个家庭需求的基于家庭的社会心理干预措施,长期的科学评估却明显不足。本研究考察了参与基于家庭的社会心理干预措施——家庭谈话干预(FTI)4至5年后家长的留存情况。FTI包括6至11次基于手册的会面。FTI的主要目标是促进家庭就疾病相关话题进行沟通,支持家长育儿,并关注孩子的需求。这项定性研究包括对18个家庭中30位家长的访谈,这些家长在4至5年前参与了FTI。数据采用内容分析法进行分析。家长们报告称,他们仍在使用在FTI期间学到的一些策略,这些策略帮助他们继续分享想法和情感,并在家庭中保持开放的沟通,从而减轻了家庭压力。家长们还使用了一些策略,帮助他们关注孩子,并增强家庭中的民主氛围。他们的参与为他们在医院外的新环境中与其他家长分享困难提供了一个跳板。长期评估对于理解一项干预措施随时间推移的可持续性至关重要。社会心理干预措施FTI,即使在家长参与4至5年后,对家庭仍然有益,FTI期间学到的策略显示出长期的持续性,并增强了家长应对不良生活事件的复原力。

相似文献

1
Parents' Long-Term Retention of the Family Talk Intervention in Pediatric Oncology.父母对儿科肿瘤家庭谈话干预的长期留存情况
J Pediatr Hematol Oncol Nurs. 2025 May-Jun;42(3):120-128. doi: 10.1177/27527530251342151. Epub 2025 Jul 17.
2
The Family Talk Intervention in Pediatric Oncology: Ill Children's Descriptions of Feasibility and Potential Effects.儿科肿瘤学中的家庭谈话干预:患病儿童对可行性和潜在效果的描述
J Pediatr Hematol Oncol Nurs. 2022 May-Jun;39(3):143-154. doi: 10.1177/27527530221068423. Epub 2022 Feb 17.
3
Family bonding as a result of the family talk intervention in pediatric oncology: Siblings' experiences.家庭谈话干预对儿科肿瘤患者家庭关系的影响:兄弟姐妹的经历
Pediatr Blood Cancer. 2022 Mar;69(3):e29517. doi: 10.1002/pbc.29517. Epub 2021 Dec 31.
4
The experiences of family members in the year following the diagnosis of a child or adolescent with cancer: a qualitative systematic review.儿童或青少年癌症诊断后一年内家庭成员的经历:一项定性系统综述
JBI Database System Rev Implement Rep. 2015 Jun 12;13(5):293-329. doi: 10.11124/jbisrir-2015-1698.
5
Family-centred interventions for Indigenous early childhood well-being by primary healthcare services.以初级医疗保健服务为中心的家庭干预措施,促进土著儿童早期的身心健康。
Cochrane Database Syst Rev. 2022 Dec 13;12(12):CD012463. doi: 10.1002/14651858.CD012463.pub2.
6
Survivor, family and professional experiences of psychosocial interventions for sexual abuse and violence: a qualitative evidence synthesis.性虐待和暴力的心理社会干预的幸存者、家庭和专业人员的经验:定性证据综合。
Cochrane Database Syst Rev. 2022 Oct 4;10(10):CD013648. doi: 10.1002/14651858.CD013648.pub2.
7
Parents' and informal caregivers' views and experiences of communication about routine childhood vaccination: a synthesis of qualitative evidence.父母及非正式照料者关于儿童常规疫苗接种沟通的观点与经历:定性证据综述
Cochrane Database Syst Rev. 2017 Feb 7;2(2):CD011787. doi: 10.1002/14651858.CD011787.pub2.
8
Child, family and professional views on valued communication outcomes for non-verbal children with neurodisability: A qualitative meta-synthesis.儿童、家庭和专业人员对神经发育障碍的非言语儿童有价值的沟通结果的看法:定性元分析。
Int J Lang Commun Disord. 2024 Nov-Dec;59(6):2946-2984. doi: 10.1111/1460-6984.13121. Epub 2024 Oct 17.
9
Parent training interventions for parents with intellectual disability.针对智障父母的家长培训干预措施。
Cochrane Database Syst Rev. 2018 Jul 13;7(7):CD007987. doi: 10.1002/14651858.CD007987.pub3.
10
The risks, benefits, and resource implications of different diets in gastrostomy-fed children: The YourTube mixed method study.胃造口喂养儿童不同饮食的风险、益处及资源影响:YouTube混合方法研究
Health Technol Assess. 2025 Jul;29(25):1-21. doi: 10.3310/RRREF7741.