Ivéus Kerstin, Holm Maja, Kreicbergs Ulrika, Udo Camilla, Lövgren Malin
Department of Healthcare Science, Marie Cederschiöld University, Stockholm, Sweden.
Department of Nursing Sciences, Sophiahemmet University, Stockholm, Sweden.
J Pediatr Hematol Oncol Nurs. 2025 May-Jun;42(3):120-128. doi: 10.1177/27527530251342151. Epub 2025 Jul 17.
Despite the significant psychosocial challenges faced by families in pediatric oncology, there is a notable lack of long-term scientific evaluations of family-based psychosocial interventions that address the needs of the entire family. This study examines parental retention 4-5 years after participating in a psychosocial family-based intervention family talk intervention (FTI). FTI consists of 6-11 manual-based meetings. The main goals of FTI are to facilitate family communication about illness-related topics, support parenting, and make the children's needs visible. This qualitative study included interviews from 30 parents from 18 families who had participated in FTI 4-5 years earlier. Data were analyzed using content analysis. Parents reported that they still used several of the strategies they had learned during FTI that helped them to continue to share their thoughts and emotions and maintain an open communication within the family, which reduced the family's stress. Parents also used strategies that helped them to put the spotlight on the children and to increase the democracy in the family. Their participation provided a springboard to participate in new contexts outside the hospital where they share their difficulties with other parents. Long-term evaluation is crucial for understanding an intervention's sustainability over time. The psychosocial intervention, FTI, remained beneficial for families even 4-5 years after their participation, with the strategies learned during FTI demonstrating long-term persistence and enhancing parents' resilience in coping with adverse life events.
尽管儿科肿瘤领域的家庭面临着重大的社会心理挑战,但针对满足整个家庭需求的基于家庭的社会心理干预措施,长期的科学评估却明显不足。本研究考察了参与基于家庭的社会心理干预措施——家庭谈话干预(FTI)4至5年后家长的留存情况。FTI包括6至11次基于手册的会面。FTI的主要目标是促进家庭就疾病相关话题进行沟通,支持家长育儿,并关注孩子的需求。这项定性研究包括对18个家庭中30位家长的访谈,这些家长在4至5年前参与了FTI。数据采用内容分析法进行分析。家长们报告称,他们仍在使用在FTI期间学到的一些策略,这些策略帮助他们继续分享想法和情感,并在家庭中保持开放的沟通,从而减轻了家庭压力。家长们还使用了一些策略,帮助他们关注孩子,并增强家庭中的民主氛围。他们的参与为他们在医院外的新环境中与其他家长分享困难提供了一个跳板。长期评估对于理解一项干预措施随时间推移的可持续性至关重要。社会心理干预措施FTI,即使在家长参与4至5年后,对家庭仍然有益,FTI期间学到的策略显示出长期的持续性,并增强了家长应对不良生活事件的复原力。