Department of Nursing and Health Promotion, Oslo Metropolitan University, St. Olavs Place, Post Box 4, 0130, Oslo, Norway.
Division of Technology and Innovation, Intervention Centre, Oslo University Hospital, Oslo, Norway.
BMC Palliat Care. 2024 May 8;23(1):118. doi: 10.1186/s12904-024-01447-x.
To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries' (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research.
The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC.
In total, the Nordic child population comprises around six million children (0-19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done.
This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field seem increasing, timely and relevant for the Nordic countries, as well as the international context.
为加强北欧国家的儿童舒缓治疗，有必要了解当前需求、资源、临床服务、教育和研究的最新状况，以调整和巩固未来的研究。2023 年，成立了一个北欧儿童舒缓治疗研究合作倡议。在此倡议基础上，本文概述了北欧国家儿科舒缓治疗（PPC）的以下几个方面：（a）人口特征；（b）照护模式和照护场所；（c）教育和培训；（d）研究。
北欧倡议研究人员共同收集并评估了丹麦、芬兰、格陵兰、冰岛、挪威、法罗群岛、瑞典和奥兰群岛的 PPC 特征的现有数据。数据以矩阵形式呈现，包括人口特征、照护模式和场所、教育和培训以及北欧背景下的研究领域。研究结果以叙述和描述的方式呈现，概述了北欧 PPC。
北欧儿童总人口约为 600 万（0-19 岁），其中约有 41200 人估计患有生命有限或危及生命的疾病。医疗保健服务通过各种照护模式提供，从专门照护到家庭照护。总体而言，教育和培训机会较少，但也有一些例外。此外，北欧在 PPC 方面的研究表明，这是一个不断发展的领域，尽管还有很多工作要做。
本文概述了北欧国家当前的 PPC 状况。尽管仍有一些差异需要注意，但北欧国家 PPC 面临的优势和挑战总体上是相似的，需要采取联合行动，以增加证据、服务和教育，为 PPC 中的儿童、家庭和医护人员提供更好的服务。尽管 PPC 的结构前提存在差异，但旨在为该领域提供证据的研究工作似乎正在增加，对北欧国家乃至国际背景都是及时和相关的。
