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“你愿意让我握住你的手吗?”:临终导乐介绍。

"Would you like me to take your hand?": Introduction to End of Life Doulas.

机构信息

School of Social and Behavioral Sciences, Mercy College, Dobbs Ferry, NY, USA.

Grief Support Services and End of Life Preparation, Oxford, OH, USA.

出版信息

Omega (Westport). 2024 Sep;89(4):1609-1627. doi: 10.1177/00302228221097290. Epub 2022 Apr 27.

DOI:10.1177/00302228221097290
PMID:35477314
Abstract

End-of-life (EOL) doulas are care providers and companions that offer spiritual, emotional, psychosocial, or psychological care to a person who is dying as well as their family and loved ones (Fukuzawa & Kondo, 2017). However, much like other options for EOL care (e.g., hospice, palliative care), their practice is often underutilized and misunderstood. There is limited research on EOL doulas, including who they are and what they do, leaving an opening for future studies to explore the topic (Krawczyk & Rush, 2020). As part of a larger investigation to gather information on EOL doulas, 12 in-depth, semi-structured interviews were conducted with certified doulas regarding their experiences. Three themes emerged from this project: motivations to become an EOL doula, roles of an EOL doula, and challenges of an EOL doula. In this article, only two themes, motivations to become an EOL doula and roles of an EOL doula are discussed.

摘要

临终(EOL)导乐是指为临终者及其家人和亲人提供精神、情感、心理社会或心理关怀的护理人员(Fukuzawa & Kondo,2017)。然而,与其他 EOL 护理选项(例如,临终关怀、姑息治疗)一样,他们的实践往往未被充分利用和误解。关于 EOL 导乐的研究有限,包括他们是谁以及他们的工作内容,这为未来的研究探索该主题留下了空间(Krawczyk & Rush,2020)。作为一项更广泛的调查的一部分,旨在收集关于 EOL 导乐的信息,对 12 名经过认证的导乐进行了深入的半结构化访谈,以了解他们的经验。从这个项目中出现了三个主题:成为 EOL 导乐的动机、EOL 导乐的角色以及 EOL 导乐的挑战。在本文中,仅讨论了两个主题,即成为 EOL 导乐的动机和 EOL 导乐的角色。

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引用本文的文献

1
Experiences of engaging a death doula: qualitative interviews with bereaved family members.聘请死亡陪伴者的经历:对 bereaved 家庭成员的定性访谈 。(注:“bereaved”常见释义为“丧失亲人的、新近丧亲的” )
Palliat Care Soc Pract. 2023 Nov 8;17:26323524231207112. doi: 10.1177/26323524231207112. eCollection 2023.