Donley Sarah, Fannin Casey
Jacksonville State University, Jacksonville, AL, USA.
Omega (Westport). 2024 Sep 7:302228241274969. doi: 10.1177/00302228241274969.
The medicalization of death has left gaps in the spiritual and psychosocial well-being of the dying. Factors like professional and caregiver burnout, lack of training, overburdened caseloads and rigid schedules, and other organizational constraints lead to holistic, humane care falling through the cracks. Consequently, the dying and their families are opting to rely on individuals who can bridge these gaps-end-of-life (EOL) doulas. EOL doulas employ a variety of non-medical practices from touch therapies to legacy projects to religious rites that provide support covering the emotional, spiritual, and practical aspects of dying. Utilizing qualitative interviews with 23 EOL doulas located and working in the United States, this research offers insights into doulas' provisions of spiritual care, how death doulas' understanding of the death transition inform spiritual care provisions, as well as how death doulas navigate differences in spiritual and religious belief systems between themselves and their clients. The study emphasizes the critical role of EOL doulas in bridging gaps in end-of-life care, providing personalized, compassionate support sometimes missing in institutional settings.
死亡的医学化在濒死者的精神和社会心理福祉方面留下了空白。诸如专业人员和护理人员倦怠、缺乏培训、工作量过大和日程安排死板等因素,以及其他组织限制,导致全面、人道的护理出现漏洞。因此,濒死者及其家人选择依赖那些能够弥合这些差距的人——临终关怀陪护者。临终关怀陪护者采用从触摸疗法到遗愿项目再到宗教仪式等各种非医疗方法,提供涵盖临终情感、精神和实际方面的支持。本研究通过对23名在美国从业的临终关怀陪护者进行定性访谈,深入了解了陪护者提供精神关怀的情况、死亡陪护者对死亡过渡的理解如何影响精神关怀的提供,以及死亡陪护者如何应对自身与客户之间精神和宗教信仰体系的差异。该研究强调了临终关怀陪护者在弥合临终关怀差距方面的关键作用,提供了机构环境中有时所缺乏的个性化、富有同情心的支持。