Jones Hannah, Webb Lynda, Dyson Matthew, Nazarpour Kianoush
Edinburgh Neuroprosthetics Laboratory, The University of Edinburgh, Edinburgh, United Kingdom.
Intelligent Sensing Laboratory, Newcastle University, Newcastle upon Tyne, United Kingdom.
Front Neurosci. 2022 Apr 14;16:863833. doi: 10.3389/fnins.2022.863833. eCollection 2022.
The purpose of this study was to explore a range of perspectives on how academic research and clinical assessment of upper-limb prosthetics could happen in environments outside of laboratories and clinics, such as within peoples' homes. Two co-creation workshops were held, which included people who use upper limb prosthetic devices (hereafter called users), clinicians, academics, a policy stakeholder, and a representative from the upper-limb prosthetics industry (hereafter called professionals). The discussions during the workshops indicate that research and clinical assessment conducted remotely from a laboratory or clinic could inform future solutions that address user needs. Users were open to the idea of sharing sensor and contextual data from within their homes to external laboratories during research studies. However, this was dependent upon several considerations, such as choice and control over data collection. Regarding clinical assessment, users had reservations of how data may be used to inform future prosthetic prescriptions whilst, clinicians were concerned with resource implications and capacity to process user data. The paper presents findings of the discussions shared by participants during both workshops. The paper concludes with a conjecture that collecting sensor and contextual data from users within their home environment will contribute towards literature within the field, and potentially inform future care policies for upper limb prosthetics. The involvement of users during such studies will be critical and can be enabled via a co-creation approach. In the short term, this may be achieved through academic research studies, which may in the long term inform a framework for clinical in-home trials and clinical remote assessment.
本研究的目的是探讨在实验室和诊所之外的环境中，如在人们家中，如何开展上肢假肢的学术研究和临床评估的一系列观点。举办了两次共创研讨会，参与者包括使用上肢假肢装置的人（以下简称使用者）、临床医生、学者、政策利益相关者以及上肢假肢行业的代表（以下简称专业人员）。研讨会上的讨论表明，在实验室或诊所之外远程进行的研究和临床评估可为满足用户需求的未来解决方案提供信息。使用者愿意在研究期间将家中的传感器和情境数据分享给外部实验室。然而，这取决于几个因素，如对数据收集的选择和控制。关于临床评估，使用者对数据如何用于指导未来的假肢处方有所保留，而临床医生则关注资源影响和处理用户数据的能力。本文介绍了两次研讨会上参与者分享的讨论结果。本文最后推测，在用户家庭环境中收集传感器和情境数据将有助于该领域的文献，并可能为未来的上肢假肢护理政策提供信息。在这类研究中让使用者参与将至关重要，可通过共创方法实现。短期内，这可通过学术研究来实现，从长远来看，这可能为家庭临床试验和临床远程评估框架提供信息。
