Berghs Maria
Allied Health Sciences, De Montfort University, Leicester, United Kingdom.
Front Sociol. 2022 Apr 12;7:782582. doi: 10.3389/fsoc.2022.782582. eCollection 2022.
The COVID-19 pandemic has inversed certainties of absolutes of cure in everyday life but paradoxically this has occurred during a time when novel scientific advancements seem to herald a new frontier of cures for rare diseases, chronic conditions, disabilities and viruses that were previously incurable. In this paper, I illustrate the development of a logic of cure by first of all noting a lacuna in the medical sociological and anthropological literature, where although a lot of empirical research and theoretical work to understand cure has been undertaken, there has been no sociology or anthropology of cure. Using three case studies, I examine what they reveal about the logic of cure. Firstly, I argue that there is a development of a bioethics of cure in reactions of disability community and disabled people to care as cure during the COVID-19 pandemic. The second case-study focuses on understanding limitations of vaccines and how people react against such indeterminancies of loss of absolutes of cure. Lastly, the final case study describes how while there are cures, for example, for rare genetic conditions, they are often initially curated with long-term cost-benefit analysis for the Global North. In conclusion, it is found that many of the developments within sociology and anthropology are missing from a logic of cure and that a new theory of cure has to develop.
新冠疫情颠覆了日常生活中治愈疾病的确定性，但矛盾的是，这一现象发生在一个新的科学进展似乎预示着罕见疾病、慢性病、残疾以及以前无法治愈的病毒治疗新前沿的时代。在本文中，我首先指出医学社会学和人类学文献中的一个空白，以此来说明治愈逻辑的发展。在这一领域，虽然已经开展了许多旨在理解治愈的实证研究和理论工作，但却没有关于治愈的社会学或人类学研究。通过三个案例研究，我考察了它们所揭示的治愈逻辑。首先，我认为在新冠疫情期间，残疾群体和残疾人对作为治愈手段的护理的反应中，出现了一种治愈的生物伦理学发展。第二个案例研究聚焦于理解疫苗的局限性以及人们如何应对治愈确定性丧失的这种不确定性。最后，第三个案例研究描述了尽管存在针对罕见遗传疾病的治疗方法，但这些方法最初往往是为全球北方地区进行长期成本效益分析后才确定的。总之，研究发现社会学和人类学中的许多发展在治愈逻辑中缺失，因此必须发展一种新的治愈理论。
