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前往瑞士接受协助自杀:以色列考虑者对协助自杀的看法、态度和临终偏好。

Travelling to die: views, attitudes and end-of-life preferences of Israeli considering receiving aid-in-dying in Switzerland.

机构信息

Department of Nursing, University of Haifa, Haifa, Israel.

出版信息

BMC Med Ethics. 2022 Apr 30;23(1):48. doi: 10.1186/s12910-022-00785-w.

DOI:10.1186/s12910-022-00785-w
PMID:35501743
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9063070/
Abstract

BACKGROUND

Following the increased presence of the Right-to-Die Movement, improved end-of-life options, and the political and legal status of aid-in-dying around the globe, suicide tourism has become a promising alternative for individuals who wish to end their lives. Yet, little is known about this from the perspective of those who engage in the phenomenon.

METHODS

This study applied the qualitative research approach, following the grounded theory tradition. It includes 11 in-depth semi-structured interviews with Israeli members of the Swiss non-profit Dignitas who contemplated traveling to Switzerland for aid-in-dying.

RESULTS

Seven themes emerged from the data analysis, including health and functioning; feelings regarding survivorship and existence; interacting with the health sector; attitudes regarding death and dying; suicide; choosing death; and choosing suicide tourism. A significant portion of the participants had experienced suicidal thoughts and had even previously attempted suicide, some more than once. Most of them referred to chronic illnesses, functional disability, and social isolation. They understand suffering within the subjective dimension, namely only by the person who is actually subjected to the disease, ailments, and disability. Participants regarded aid-in-dying in Switzerland as positive thanks to its guaranteed outcome: "beautiful death", compared to "disadvantaged dying" which places a burden on the participants' loved ones throughout the prolonged dying. Most of them do not necessarily want to have their loved ones beside them when they die, and they see no significant meaning in dying in a foreign country to which they have no emotional or civil attachment.

CONCLUSION

The desirable approval or tragic refusal by Dignitas to participants' requests for suicide tourism enhances the paradox between the perception of aid-in-dying as a mechanism for fulfilling controlled death and its bureaucratic and materialistic characteristics specifically reflected in a paid, formalized approach to aid-in-dying that cultivate dependency and collaboration.

摘要

背景

随着“死亡权利”运动的兴起、临终选择的改善以及全球安乐死的政治和法律地位的变化,自杀旅游已成为那些希望结束生命的人的一种有前途的选择。然而,从参与这一现象的人的角度来看,人们对此知之甚少。

方法

本研究采用定性研究方法,遵循扎根理论传统。它包括对考虑前往瑞士接受协助自杀的 11 名以色列 Dignitas 非营利组织成员进行的 11 次深入半结构化访谈。

结果

从数据分析中出现了七个主题,包括健康和功能;对生存和存在的感受;与卫生部门的互动;对死亡和临终的态度;自杀;选择死亡;和选择自杀旅游。一部分参与者经历过自杀念头,甚至曾经尝试过自杀,有些人不止一次。他们中的大多数人提到了慢性疾病、功能障碍和社会孤立。他们在主观维度理解痛苦,即只有实际承受疾病、疾病和残疾的人才能理解。参与者将瑞士的协助自杀视为积极的,因为它保证了“美丽的死亡”的结果,与“处于不利地位的死亡”相比,后者给参与者的亲人带来了整个漫长死亡过程中的负担。他们中的大多数人并不一定希望在他们去世时他们的亲人在身边,他们认为在没有情感或公民依恋的外国去世没有什么意义。

结论

Dignitas 对参与者自杀旅游请求的渴望批准或悲惨拒绝,增强了人们对协助自杀的看法,这种看法将其视为实现控制死亡的机制与它的官僚主义和唯物主义特征之间的悖论,特别是体现在付费、正式的协助自杀方法中,这种方法培养了依赖性和合作性。

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本文引用的文献

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Death Stud. 2022;46(7):1557-1568. doi: 10.1080/07481187.2021.1926632. Epub 2021 Jun 4.
2
Assisted dying around the world: a status quaestionis.全球辅助死亡状况:一个悬而未决的问题。
Ann Palliat Med. 2021 Mar;10(3):3540-3553. doi: 10.21037/apm-20-637. Epub 2020 Sep 4.
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Suffering, authenticity, and physician assisted suicide.痛苦、本真性与医生协助自杀。
Med Health Care Philos. 2020 Sep;23(3):353-359. doi: 10.1007/s11019-019-09929-z.
4
A Netnographic Approach: Views on Assisted Dying for Individuals With Dementia.一种网络民族志方法:对痴呆症患者辅助自杀的看法。
Qual Health Res. 2020 Nov;30(13):2077-2091. doi: 10.1177/1049732320925795. Epub 2020 Jun 20.
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Religious observance and perceptions of end-of-life care.宗教仪式和对临终关怀的看法。
Nurs Inq. 2020 Jul;27(3):e12347. doi: 10.1111/nin.12347. Epub 2020 Mar 12.
6
What is the cultural value of dying in an era of assisted dying?在辅助死亡的时代,死亡的文化价值是什么?
Med Humanit. 2021 Mar;47(1):61-67. doi: 10.1136/medhum-2018-011621. Epub 2019 Jul 26.
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Family members' experiences of assisted dying: A systematic literature review with thematic synthesis.家庭成员对协助死亡的体验:系统文献综述与主题综合。
Palliat Med. 2019 Sep;33(8):1091-1105. doi: 10.1177/0269216319857630. Epub 2019 Jun 27.
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