Interdisciplinary Centre for Palliative Medicine, University Hospital, Heinrich Heine University, Moorenstraße 5, 40225, Duesseldorf, Germany.
Interdisciplinary Centre for Palliative Medicine, University Hospital Wuerzburg, Wuerzburg, Germany.
BMC Palliat Care. 2022 May 3;21(1):63. doi: 10.1186/s12904-022-00958-9.
The SARS-CoV-2 pandemic has presented major challenges to the health system. Despite high acute case numbers, patients without Covid-19 still need to be cared for. Due to the severity of the disease and a possible stressful overall situation, patients with palliative care needs also require comprehensive care during pandemic times. In addition to specialized palliative care facilities, this also takes place in non palliative care wards. In order to ensure this general palliative care also in pandemic times, the experience of the staff should be used. The aim of this paper is to examine challenges and possible solutions for general palliative care inpatients in relation to the care of seriously ill and dying patients and their relatives.
Qualitative semi-structured focus groups were conducted online for the study. Participants were staff from intensive care or isolation wards or from units where vulnerable patients (e.g. with cognitive impairment) are cared for. The focus groups were recorded and subsequently transcribed. The data material was analysed with the content structuring content analysis according to Kuckartz.
Five focus groups with four to eight health care professionals with various backgrounds were conducted. Fifteen main categories with two to eight subcategories were identified. Based on frequency and the importance expressed by the focus groups, six categories were extracted as central aspects: visiting regulations, communication with relatives, hygiene measures, cooperation, determination of the patients will and the possibility to say good bye.
The pandemic situation produced several challenges needing specific solutions in order to manage the care of seriously ill and dying patients. Especially visiting needs regulation to prevent social isolation and dying alone. Finding alternative communication ways as well as interprofessional and interdisciplinary cooperation is a precondition for individualised care of seriously ill and dying patients and their relatives. Measures preventing infections should be transparently communicated in hospitals.
SARS-CoV-2 大流行给卫生系统带来了重大挑战。尽管急性病例数量很高,但仍需要照顾没有 COVID-19 的患者。由于疾病的严重程度和可能的紧张的整体情况,有姑息治疗需求的患者在大流行期间也需要全面的护理。除了专门的姑息治疗设施外,这也发生在非姑息治疗病房。为了确保大流行期间也能进行一般姑息治疗,应该利用工作人员的经验。本文的目的是研究在照顾重病和临终患者及其亲属方面,普通姑息治疗住院患者面临的挑战和可能的解决方案。
研究采用定性半结构式焦点小组在线进行。参与者是来自重症监护或隔离病房或护理脆弱患者(如认知障碍患者)的单位的工作人员。焦点小组被记录下来,随后进行了转录。根据 Kuckartz 的内容结构内容分析方法对数据材料进行了分析。
进行了五组焦点小组,每组有四到八名具有不同背景的医疗保健专业人员。确定了十五个主要类别,每个类别有两到八个子类别。根据焦点小组的频率和重要性,提取了六个作为核心方面的类别:探视规定、与亲属的沟通、卫生措施、合作、确定患者意愿和说再见的可能性。
大流行情况产生了一些需要特定解决方案的挑战,以管理重病和临终患者的护理。特别是需要规范探视规定,以防止社会隔离和孤独死亡。寻找替代沟通方式以及跨专业和跨学科合作是为重病和临终患者及其亲属提供个性化护理的前提。应在医院透明地传达预防感染的措施。