Department of Physiotherapy, Oslo Metropolitan University, Oslo, Norway.
Department of Neurology, Akershus University Hospital, Lørenskog, Norway.
Health Expect. 2022 Aug;25(4):1741-1752. doi: 10.1111/hex.13517. Epub 2022 May 2.
The scope of this priority-setting process is communication and collaboration in transitional care for patients with acute stroke. Actively involving persons with stroke and their family caregivers is important both in transitional care and when setting priorities for research. Established priority-setting methods are time-consuming and require extensive resources. They are therefore not feasible in small-scale research. This article describes a pragmatic priority-setting process to identify a prioritized top 10 list of research needs regarding transitional care for patients with acute stroke.
A pragmatic priority-setting approach inspired by the James Lind Alliance was developed. It involves establishing a user group, identifying the research needs through an online survey, analysing and checking the research needs against systematic reviews, culminating in an online prioritization of the top 10 list.
The process was completed in 7 months. A total of 122 patients, family caregivers, health personnel and caseworkers submitted 484 research needs, and 19 users prioritized the top 10 list. The list includes the categories 'patients and caregivers' needs and health literacy', 'health personnel's common understanding', 'information flow between health personnel and patients and caregivers', 'available interventions and follow-up of patients and caregivers', 'interaction and collaboration between health personnel and caseworkers across hospital and primary healthcare' and 'disabilities after stroke'.
This paper outlines a pragmatic approach to identifying and prioritizing users' research needs that was completed in 7 months. The top 10 list resulting from this priority setting process can guide future research relating to communication and collaboration during the transition from hospital to the community for patients with stroke.
Members of three stroke organizations participated in the advisory group. They gave feedback on the scope and the process, distributed the surveys and prioritized the top 10 list. Persons with stroke and their caregivers submitted research needs in the survey.
本优先序设定过程的范围是急性脑卒中患者过渡期的沟通与协作。让脑卒中患者及其家属照护者积极参与过渡期护理和研究优先序设定都非常重要。既定的优先序设定方法既耗时又需要广泛的资源，因此在小规模研究中不可行。本文描述了一种实用的优先序设定过程，旨在确定急性脑卒中患者过渡期护理的前 10 项研究需求的优先排序清单。
我们采用了受詹姆斯林德联盟启发的实用优先序设定方法。它包括建立用户群体，通过在线调查确定研究需求，对系统评价进行分析和检查研究需求，最终在线对前 10 项清单进行优先级排序。
该过程在 7 个月内完成。共有 122 名患者、家属照护者、卫生人员和个案工作者提交了 484 项研究需求，19 名用户对前 10 项清单进行了优先级排序。该清单包括“患者和照护者的需求及健康素养”、“卫生人员的共同理解”、“卫生人员与患者和照护者之间的信息流动”、“患者和照护者的可用干预措施和随访”、“医院和初级保健之间卫生人员和个案工作者的互动与协作”和“脑卒中后的残疾”等类别。
本文概述了一种实用的方法，可在 7 个月内确定和优先考虑用户的研究需求。本优先序设定过程产生的前 10 项清单可以指导未来与脑卒中患者从医院过渡到社区的沟通与协作相关的研究。
三个卒中组织的成员参加了顾问小组。他们对范围和过程提供了反馈，分发了调查并对前 10 项清单进行了优先级排序。脑卒中患者及其照护者在调查中提交了研究需求。
