Department of Psychology, University of Victoria, Victoria, Canada.
Institute on Aging & Lifelong Health, University of Victoria, Victoria, Canada.
Health Expect. 2024 Aug;27(4):e14136. doi: 10.1111/hex.14136.
The purpose of this study was to engage key stakeholders in a health research priority-setting process to identify, prioritize and produce a community-driven list of research questions addressing intersectional issues on mental health and addictions (MHA) in acquired brain injury (ABI).
A multiphasic health research priority-setting process was co-designed and executed with community-based stakeholders, including researchers, health professionals, clinicians, service providers, representatives from brain injury associations, policy makers and people with lived experience of ABI and MHA, including patients and their family members. Stakeholders' ideas led to the generation of research questions, which were prioritized at a 1-day workshop.
Fifty-nine stakeholders participated in the priority-setting activity during the workshop, which resulted in a rank-ordered list of the top 10 questions for research addressing the intersections of ABI and MHA. Questions identified touched on several pressing issues (e.g., opioid crisis, homelessness), encompassed multiple subtypes of ABI (e.g., hypoxic-ischaemic, mild traumatic), and involved different domains (e.g., identification, intervention) of health research.
This community-driven health research priority-setting study identified and prioritized research questions addressing the intersections of ABI and MHA. Researchers and funding agencies should use this list to inform their agendas and address stakeholders' most urgent needs, fostering meaningful improvements to clinical services.
An 11-person working group comprised of people with lived experience, service providers, researchers, healthcare professionals and other key stakeholders collaboratively developed and informed the scope, design, methodology and interpretation of this study. Over 50 community-based stakeholders contributed to the research priority-setting activity. One co-author is a person with lived experience.
本研究旨在让关键利益攸关方参与一项健康研究优先事项设定过程，以确定、优先考虑并制定一份由社区驱动的研究问题清单，这些问题涉及脑损伤（ABI）相关的心理健康和成瘾（MHA）的交叉问题。
与社区利益攸关方（包括研究人员、卫生专业人员、临床医生、服务提供者、脑损伤协会代表、政策制定者以及有 ABI 和 MHA 经历的人，包括患者及其家属）共同设计和执行了一个多阶段的健康研究优先事项设定过程。利益攸关方的想法促成了研究问题的产生，这些问题在为期一天的研讨会上进行了优先排序。
59 名利益攸关方在研讨会上参与了优先事项设定活动，最终确定了排名前 10 的研究问题，这些问题涉及 ABI 和 MHA 交叉问题。确定的问题涉及几个紧迫的问题（例如，阿片类药物危机、无家可归），涵盖了多种 ABI 亚型（例如，缺氧缺血性、轻度创伤性），并涉及健康研究的不同领域（例如，识别、干预）。
这项由社区驱动的健康研究优先事项设定研究确定并优先考虑了涉及 ABI 和 MHA 交叉问题的研究问题。研究人员和资助机构应使用此清单来为他们的议程提供信息，并解决利益攸关方最紧迫的需求，促进对临床服务的有意义的改进。
由有生活经验的人、服务提供者、研究人员、医疗保健专业人员和其他主要利益攸关方组成的 11 人工作组共同制定并告知了本研究的范围、设计、方法和解释。超过 50 名社区利益攸关方为研究优先事项设定活动做出了贡献。一位共同作者是有生活经验的人。
