Faculty of Health Sciences, Oslo Metropolitan University, Oslo, Norway
Center for Development of Institutional and Home Care, Lørenskog, Akershus.
BMJ Open. 2019 Aug 30;9(8):e027473. doi: 10.1136/bmjopen-2018-027473.
To summarise study descriptions of the James Lind Alliance (JLA) approach to the priority setting partnership (PSP) process and how this process is used to identify uncertainties and to develop lists of top 10 priorities.
Scoping review.
The Embase, Medline (Ovid), PubMed, CINAHL and the Cochrane Library as of October 2018.
All studies reporting the use of JLA process steps and the development of a list of top 10 priorities, with adult participants aged 18 years.
A data extraction sheet was created to collect demographic details, study aims, sample and patient group details, PSP details (eg, stakeholders), lists of top 10 priorities, descriptions of JLA facilitator roles and the PSP stages followed. Individual and comparative appraisals were discussed among the scoping review authors until agreement was reached.
Database searches yielded 431 potentially relevant studies published in 2010-2018, of which 37 met the inclusion criteria. JLA process participants were patients, carers and clinicians, aged 18 years, who had experience with the study-relevant diagnoses. All studies reported having a steering group, although partners and stakeholders were described differently across studies. The number of JLA PSP process steps varied from four to eight. Uncertainties were typically collected via an online survey hosted on, or linked to, the PSP website. The number of submitted uncertainties varied across studies, from 323 submitted by 58 participants to 8227 submitted by 2587 participants.
JLA-based PSP makes a useful contribution to identifying research questions. Through this process, patients, carers and clinicians work together to identify and prioritise unanswered uncertainties. However, representation of those with different health conditions depends on their having the capacity and resources to participate. No studies reported difficulties in developing their top 10 priorities.
总结詹姆斯林德联盟（JLA）在优先事项设定伙伴关系（PSP）过程中的方法，并说明如何使用该方法来确定不确定性，并制定前 10 项重点清单。
范围综述。
截至 2018 年 10 月，在 Embase、Medline（Ovid）、PubMed、CINAHL 和 Cochrane 图书馆中进行检索。
所有报告使用 JLA 过程步骤并制定前 10 项重点清单的研究，参与者为 18 岁以上的成年人。
创建了一个数据提取表，以收集人口统计学细节、研究目标、样本和患者组细节、PSP 细节（例如，利益相关者）、前 10 项重点清单、JLA 协调员角色的描述以及遵循的 PSP 阶段。范围综述作者之间进行了个别和比较评估，直到达成一致意见。
数据库搜索产生了 2010 年至 2018 年期间发表的 431 项潜在相关研究，其中 37 项符合纳入标准。JLA 过程参与者为年龄在 18 岁以上、具有研究相关诊断经验的患者、护理人员和临床医生。所有研究都报告说有一个指导小组，尽管合作伙伴和利益相关者在不同的研究中描述不同。JLA PSP 过程步骤的数量从四个到八个不等。不确定性通常通过在 PSP 网站上托管或链接的在线调查收集。提交的不确定性数量因研究而异，从 58 名参与者提交的 323 项到 2587 名参与者提交的 8227 项不等。
基于 JLA 的 PSP 对确定研究问题做出了有益的贡献。通过这个过程，患者、护理人员和临床医生共同努力，确定和优先考虑未解决的不确定性。然而，不同健康状况的人的代表性取决于他们是否有能力和资源参与。没有研究报告在制定前 10 项重点方面存在困难。
