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让家庭参与生命历程干预研究:推进公平的必要步骤。

Engaging Families in Life Course Intervention Research: An Essential Step in Advancing Equity.

机构信息

Family Voices, Lexington, Massachusetts.

Reaching Our Sisters Everywhere, Lithonia, Georgia.

出版信息

Pediatrics. 2022 May 1;149(Suppl 5). doi: 10.1542/peds.2021-053509G.

Abstract

Life course intervention research requires a thorough understanding of complex factors that interact to affect health over time. Partnerships with families and communities are critical to understanding these interconnections and identifying effective interventions. Here, family and community engagement are presented, aligned with the 5 phases of the life course intervention research framework: planning, design, implementation, evaluation, and translation. During planning, the researcher considers their own starting position and what they need to learn from families and the community. The design phase produces a plan for family engagement that is layered, iterative, and includes qualitative methods that will inform life course modeling and the research process. The implementation phase includes administrative actions such as creating opportunities for contributions and providing compensation to family and community partners. The evaluation phase requires measurement of the quality of partnerships with families and community and includes making adjustments as indicated to improve these partnerships. This phase also calls for reflection on the impact these partnerships had on the intervention, including if they made a difference for those being served. During translation, the researcher works with all partners, including families and communities, about follow up steps toward project continuation, replication, or completion. The researcher also works collaboratively in determining how the study results are shared. A holistic approach to health over the life course that is designed and executed in partnership with families and their community can generate research findings with broad practical applicability and strong translational potential.

摘要

生命历程干预研究需要深入了解随着时间的推移而相互作用影响健康的复杂因素。与家庭和社区建立伙伴关系对于理解这些相互关系和确定有效的干预措施至关重要。在这里,提出了家庭和社区的参与,与生命历程干预研究框架的 5 个阶段(规划、设计、实施、评估和转化)保持一致。在规划阶段,研究人员会考虑自己的初始立场以及需要从家庭和社区中学到什么。设计阶段会为家庭参与制定计划,该计划具有层次性、迭代性,并包含定性方法,这些方法将为生命历程建模和研究过程提供信息。实施阶段包括行政行动,例如为家庭和社区合作伙伴创造贡献机会和提供补偿。评估阶段需要衡量与家庭和社区的伙伴关系的质量,并根据需要进行调整以改善这些伙伴关系。这一阶段还要求反思这些伙伴关系对干预措施的影响,包括它们是否为服务对象带来了改变。在转化阶段,研究人员与所有合作伙伴(包括家庭和社区)合作,共同探讨项目的后续步骤,如继续、复制或完成。研究人员还共同决定如何分享研究结果。与家庭及其社区合作设计和实施的、针对整个生命历程的健康的整体方法可以产生具有广泛实际应用和强大转化潜力的研究结果。

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本文引用的文献

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Building a Life Course Intervention Research Framework.构建生命历程干预研究框架。
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Racial inequalities in health: Framing future research.健康方面的种族不平等:构建未来研究框架。
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