Department of Healthcare Administration and Policy, School of Public Health, 14722University of Nevada, Las Vegas, NV, USA.
Am J Hosp Palliat Care. 2023 Feb;40(2):216-224. doi: 10.1177/10499091221093314. Epub 2022 May 3.
Palliative care (PC), which improves the quality of life for patients with serious illnesses, can be offered in multiple settings, such as the hospital, community, and home. The trend toward delivering PC at home has been recently accelerated during the COVID-19 pandemic. The pandemic has created challenges for patients with serious illnesses who have been proven to be susceptible to serious COVID-19 illnesses. This review of the literature presents research studies on home PC (HPC) during the pandemic. Databases (PubMed, Scopus, and Web of Science Core Collection) were searched. Twelve research/case studies were found to be relevant. These articles gathered information either through qualitative (surveys/interviews) methods or medical records. Most qualitative articles focused on perceived challenges and opportunities from HPC professionals' perspectives. Adopting telehealth was frequently discussed as a key tool to adjust to the pandemic. In general, HPC professionals and patients had a positive attitude toward telehealth, and this attitude was much more pronounced among professionals than patients. Among HPC professionals, some reports indicated that their burnout rates reduced, and job satisfaction increased during the pandemic. Regarding clinical and cost outcomes, there is a gap in the literature on HPC during the pandemic. In conclusion, despite challenges, it seems that the pandemic has gifted some long-term opportunities for promoting HPC in combination with telehealth. COVID-19 will not be the last pandemic, and we should be prepared for the next one by updating policies and building concrete infrastructure for HPC.
姑息治疗(PC)可以提高患有严重疾病患者的生活质量,它可以在多个环境中提供,例如医院、社区和家庭。在 COVID-19 大流行期间,在家中提供 PC 的趋势最近有所加速。大流行给患有严重疾病的患者带来了挑战,他们已被证明易患严重的 COVID-19 疾病。本文献综述介绍了大流行期间的家庭姑息治疗(HPC)研究。数据库(PubMed、Scopus 和 Web of Science Core Collection)进行了检索。发现了 12 项与姑息治疗相关的研究/案例研究。这些文章通过定性(调查/访谈)方法或病历收集信息。大多数定性文章都集中在 HPC 专业人员的角度探讨了感知到的挑战和机遇。采用远程医疗经常被讨论作为适应大流行的关键工具。一般来说,HPC 专业人员和患者对远程医疗持积极态度,而且这种态度在专业人员中比患者中更为明显。在 HPC 专业人员中,一些报告表明,他们在大流行期间的倦怠率降低,工作满意度提高。关于临床和成本结果,大流行期间 HPC 的文献存在差距。总之,尽管存在挑战,但大流行似乎为结合远程医疗推广 HPC 带来了一些长期机会。COVID-19 不会是最后一次大流行,我们应该通过更新政策和为 HPC 建立具体基础设施为下一次大流行做好准备。