Hicks Ben, Read Sanna, Hu Bo, Wittenberg Raphael, Grahamslaw Amanda, Karim Anomita, Martin Evelyn, Nuzum Eleanor, Reichental Jacob, Russell Alice, Siddle Elaine, Storey Bryony, Tipping Eva, Baxter Kate, Birks Yvonne, Brayne Carol, Brimblecombe Nicola, Dangoor Margaret, Dixon Josie, Gridley Kate, Harris Peter R, Knapp Martin, Miles Eleanor, Perach Rotem, Robinson Louise, Rusted Jennifer, Stewart Rob, Thomas Alan J, Banerjee Sube
Brighton and Sussex Medical School University of Sussex Brighton UK.
Care Policy and Evaluation Centre London School of Economics and Political Science London UK.
Alzheimers Dement (N Y). 2022 May 2;8(1):e12236. doi: 10.1002/trc2.12236. eCollection 2022.
COVID-19 has impacted people with dementia and their family carers, yet little is known about effects on overall quality of life.
In a UK cohort study, pre- and post-pandemic data were collected from 114 carers and 93 recently diagnosed people with dementia. Latent growth curve modeling examined change in quality of life.
Carers reported significant decline in quality of life, although no change was demonstrated by people with dementia. In multivariable analyses, higher levels of cognitive impairment, deprivation, study site, and lower number of memory clinic contacts were associated with greater decline in carer quality of life.
Maintaining life quality for people with dementia during the pandemic appears to have come at the expense of their family carers. This inequity has fallen hardest on those caring for people with more severe dementia, in deprived areas, and with least support from memory services. These effects may be prevented or reversed by post-diagnostic care.
新冠疫情对痴呆症患者及其家庭护理人员产生了影响，但对于其对总体生活质量的影响却知之甚少。
在一项英国队列研究中，收集了114名护理人员和93名近期被诊断出患有痴呆症的患者在疫情前和疫情后的数据。采用潜在增长曲线模型研究生活质量的变化。
护理人员报告生活质量显著下降，而痴呆症患者的生活质量未显示出变化。在多变量分析中，较高水平的认知障碍、贫困程度、研究地点以及较低的记忆门诊就诊次数与护理人员生活质量的更大下降相关。
在疫情期间维持痴呆症患者的生活质量似乎是以其家庭护理人员为代价的。这种不平等对那些照顾重度痴呆症患者、生活在贫困地区且得到记忆服务支持最少的护理人员影响最大。这些影响可能通过诊断后护理来预防或扭转。
