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新冠疫情期间为痴呆症患者及其照护者设立的虚拟日间护理中心。

Virtual day center for people with dementia and their caregivers during the COVID-19 pandemic.

作者信息

Maffioletti Virgínia Lúcia Reis, Baptista Maria Alice Tourinho, Abranches Bethânia, Koatz Gabriela, Rodrigues Valeska Marinho, Deslandes Andrea, Dourado Marcia Cristina Nascimento

机构信息

Center for Alzheimer's Disease, Institute of Psychiatry, Universidade Federal do Rio de Janeiro - Rio de Janeiro, RJ, Brazil.

出版信息

Dement Neuropsychol. 2021 Oct-Dec;15(4):440-447. doi: 10.1590/1980-57642021dn15-040003.

Abstract

UNLABELLED

The coronavirus disease 2019 (COVID-19) pandemic suspended face-to-face assistance offered by community spaces, such as day centers (DCs). People with dementia (PwD) and their families were faced with the risks posed by social detachment and suspension of treatments.

OBJECTIVE

This study aimed to present a virtual day center (VDC) program offered as a preventive strategy to reduce the damage caused by social isolation and interruption of treatment imposed by the pandemic.

METHODS

The experience report, describing the feasibility of a VDC program, offered to 26 PwD and their caregivers, during the first year of the pandemic. The VDC held individual and group meetings with PwD and their families and psychoeducational support groups for caregivers.

RESULTS

The attendance rate in group activities was 80%, and that in the caregiver group was 68%, showing a good virtual interaction. Throughout the year, three PwD interrupted the service due to difficulties of the caregivers to reconcile the schedules of the activities with their professional commitments and the absence of a support network, three others died, and two were institutionalized. PwD remained physically, socially, and cognitively active through daily virtual activities. Guidance and support for caregivers contributed to the organization of routines and adaptation to the isolation and maintenance of the bond. Family meetings made it possible to mediate conflicts and expand the support network.

CONCLUSIONS

VDC is a promising modality to assist the needs and demands of PwD and their caregivers. VDC can contribute to the expansion of this intervention to individuals and families who do not have access to face-to-face treatment.

摘要

未标注

2019年冠状病毒病(COVID-19)大流行暂停了日间护理中心等社区场所提供的面对面援助。痴呆症患者及其家人面临着社会隔离和治疗中断带来的风险。

目的

本研究旨在介绍一个虚拟日间护理中心(VDC)项目,该项目作为一种预防策略,以减少大流行造成的社会隔离和治疗中断所带来的损害。

方法

这份经验报告描述了在大流行的第一年为26名痴呆症患者及其照料者提供的VDC项目的可行性。VDC与痴呆症患者及其家人举行了个人和小组会议,并为照料者举办了心理教育支持小组。

结果

小组活动的出勤率为80%,照料者小组的出勤率为68%,显示出良好的虚拟互动。在这一年中,三名痴呆症患者因照料者难以协调活动日程与工作安排以及缺乏支持网络而中断了服务,另外三人死亡,两人被送进了养老院。通过日常虚拟活动,痴呆症患者在身体、社交和认知方面保持活跃。对照料者的指导和支持有助于安排日常事务以及适应隔离状态并维持联系。家庭会议有助于调解冲突并扩大支持网络。

结论

虚拟日间护理中心是满足痴呆症患者及其照料者需求的一种有前景的模式。虚拟日间护理中心有助于将这种干预扩展到无法获得面对面治疗的个人和家庭。

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