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身材矮小的儿童和青少年的生活质量:身体发育和与身高相关的适应性认知信念的双重作用。

Quality of Life of Children and Adolescents with Short Stature: The Twofold Contribution of Physical Growth and Adaptive Height-Related Cognitive Beliefs.

作者信息

Mergulhão Beatriz, Almeida José Paulo, Moreira Helena, Castro-Correia Cíntia, Bullinger Monika, Canavarro Maria Cristina, Silva Neuza

机构信息

Center for Research in Neuropsychology and Cognitive and Behavioral Intervention (CINEICC), Faculty of Psychology and Education Sciences, University of Coimbra, Rua do Colégio Novo, 3000-115, Coimbra, Portugal.

Pediatric Endocrinology Unit, Integrated Pediatric Hospital, São João Hospital Center, Porto, Portugal.

出版信息

J Clin Psychol Med Settings. 2022 Jun;29(2):466-475. doi: 10.1007/s10880-022-09871-y. Epub 2022 May 5.

Abstract

This study aimed to examine the health-related quality of life (HrQoL), coping, height-related beliefs, and social support of children/adolescents with short stature, the sociodemographic, clinical, and psychosocial variables associated with HrQoL, and the moderating role of sociodemographic and clinical variables on the associations between psychosocial variables and HrQoL. 114 Portuguese children/adolescents with short stature, aged 8-18 years old, completed the Quality of Life in Short Stature Youth questionnaire and the Satisfaction with Social Support Scale. Regression analyses explained 54% of the variance of HrQoL, with significant main effects of current height deviation and height-related beliefs, and a significant interaction effect between beliefs and diagnosis. Results suggest that a multidisciplinary therapeutic approach, not only focused on hormone treatment to boost physical growth, but also including psychosocial interventions focused on the modification of height-related beliefs, may contribute to improve the HrQoL of pediatric patients with short stature.

摘要

本研究旨在调查身材矮小的儿童/青少年的健康相关生活质量(HrQoL)、应对方式、与身高相关的信念以及社会支持情况,与HrQoL相关的社会人口统计学、临床和心理社会变量,以及社会人口统计学和临床变量对心理社会变量与HrQoL之间关联的调节作用。114名年龄在8至18岁的葡萄牙身材矮小儿童/青少年完成了《身材矮小青少年生活质量问卷》和《社会支持满意度量表》。回归分析解释了HrQoL方差的54%,当前身高偏差和与身高相关的信念有显著的主效应,信念与诊断之间有显著的交互效应。结果表明,多学科治疗方法,不仅注重激素治疗以促进身体生长,还包括侧重于改变与身高相关信念的心理社会干预,可能有助于改善身材矮小儿科患者的HrQoL。

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