Kanakubo Aiko, Mizuno Michiyo, Asano Yoshihiro, Inoue Yumiko
Departments and Institutions, Faculty of Health Science Technology, Bunkyo Gakuin University, Tokyo, Japan.
Faculty of Medicine, University of Tsukuba, Tsukuba, Japan.
Asia Pac J Oncol Nurs. 2021 Dec 25;9(2):105-112. doi: 10.1016/j.apjon.2021.12.011. eCollection 2022 Feb.
The purpose of this study was to examine patient acceptability to making self-assessments of their health conditions using a tablet computer-based questionnaire and identify associations between acceptability and health-related quality of life (HR-QOL).
This study used a convenience sample of 54 patients with breast cancer being treated in an outpatient setting. Participants made self-assessments using a tablet computer-based questionnaire and upon completion they received a report of their results. The HR-QOL self-assessment questionnaire comprised three standardized instruments. Participants gave interviews and completed a survey at home. A follow-up, paper-based HR-QOL self-assessment was completed one month later.
Making a self-assessment with a tablet computer was acceptable to most participants, and several factors were identified to be associated with self-assessment making and patient HR-QOL. Participants' who were experiencing symptoms, interference, deteriorating physical function, and unsatisfactory levels of well-being were more favorably disposed toward making a self-assessment. At the one-month follow-up survey, however, participants' subjective well-being and physical function had decreased on average.
Patients found the HR-QOL self-assessments easy to complete in the clinical setting, and those with symptoms were particularly interested in completing the assessment. However, simply providing HR-QOL information to patients only (and not to staff) was insufficient to improve HR-QOL long-term, which decreased for participants over the month following the initial HR-QOL self-assessment. Thus, the findings of this study encourage the integration of HR-QOL self-assessments into clinical care at the time of the clinic visit, so they can be used in real time to improve HR-QOL.
本研究旨在探讨患者对使用基于平板电脑的问卷进行健康状况自我评估的接受程度，并确定接受程度与健康相关生活质量（HR-QOL）之间的关联。
本研究采用便利抽样法，选取了54名在门诊接受治疗的乳腺癌患者。参与者使用基于平板电脑的问卷进行自我评估，完成后会收到一份结果报告。HR-QOL自我评估问卷由三种标准化工具组成。参与者接受了访谈并在家中完成了一项调查。一个月后完成了一次基于纸质问卷的HR-QOL自我评估随访。
大多数参与者能够接受使用平板电脑进行自我评估，并且确定了几个与自我评估及患者HR-QOL相关的因素。出现症状、受到干扰、身体功能恶化以及幸福感水平不满意的参与者对进行自我评估的态度更为积极。然而，在为期一个月的随访调查中，参与者的主观幸福感和身体功能平均有所下降。
患者发现在临床环境中完成HR-QOL自我评估很容易，有症状的患者对完成评估尤其感兴趣。然而，仅向患者（而非工作人员）提供HR-QOL信息不足以长期改善HR-QOL，在首次HR-QOL自我评估后的一个月里，参与者的HR-QOL有所下降。因此，本研究结果鼓励在门诊就诊时将HR-QOL自我评估纳入临床护理，以便能够实时用于改善HR-QOL。
