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癌症患者的善终观念:一项定性系统评价研究方案。

Notion of a good death for patients with cancer: a qualitative systematic review protocol.

机构信息

Xiangya School of Nursing, Central South University, Changsha, China.

Xiangya School of Nursing, Central South University, Changsha, China

出版信息

BMJ Open. 2022 May 10;12(5):e056104. doi: 10.1136/bmjopen-2021-056104.

Abstract

INTRODUCTION

Promoting the quality of death and achieving a good death is one of the most important goals of palliative care in cancer care. Few studies synthesised views of patients with cancer on the notion of a good death and its associated factors. By eliciting the core elements of a good death, the review aims to identify potential unmet needs of patients with cancer and reveal their common values and care preferences at the end of life. The review also has the potential to inform the development of guidelines for clinical care and shared decision-making in palliative care practice.

METHODS AND ANALYSIS

A qualitative systematic review will be conducted and reported according to the Joanna Briggs Institute (JBI) methodology for systematic review and synthesis of qualitative data and the Preferred Reporting Items for Systematic Review and Meta-Analysis. Comprehensive search will be performed in six English and two Chinese databases from inception to 30 April 2022 to retrieve relevant qualitative articles focusing on the notion of a good death from the perspective of patients with cancer. Data will be extracted using the JBI standardised data extraction tool for qualitative research. The quality of the included studies will be critically appraised using the JBI Qualitative Assessment and Review Instrument. Data extraction and quality appraisal will be conducted by two reviewers independently. A meta-aggregative approach and narrative summary will be used to synthesise data.

ETHICS AND DISSEMINATION

Ethical approval is not needed. We will disseminate the findings through international conferences related to cancer care or palliative care. The final review will be submitted and published in a peer-reviewed journal.

PROSPERO REGISTRATION NUMBER

CRD42021266629.

摘要

简介

在癌症关怀中,提高死亡质量并实现善终是姑息治疗的最重要目标之一。很少有研究综合了癌症患者对善终概念及其相关因素的看法。通过引出善终的核心要素,本综述旨在确定癌症患者未满足的需求,并揭示他们在生命末期的共同价值观和护理偏好。该综述还有可能为姑息治疗实践中的临床护理和共同决策指南的制定提供信息。

方法和分析

将按照乔安娜·布里格斯研究所(JBI)的系统评价和定性数据综合以及系统评价和荟萃分析的首选报告项目的方法进行定性系统评价,并进行报告。将从 2022 年 4 月 30 日起,在六个英文数据库和两个中文数据库中进行全面搜索,以检索从癌症患者角度关注善终概念的相关定性文章。将使用 JBI 标准化定性研究数据提取工具提取数据。将使用 JBI 定性评估和审查工具对纳入研究的质量进行批判性评估。数据提取和质量评估将由两名评审员独立进行。将使用元综合方法和叙述性总结来综合数据。

伦理和传播

不需要伦理批准。我们将通过与癌症护理或姑息治疗相关的国际会议来传播研究结果。最终的综述将提交并发表在同行评议的期刊上。

PROSPERO 注册号:CRD42021266629。

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