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界定善终(成功离世):文献综述及对研究与公众对话的呼吁

Defining a Good Death (Successful Dying): Literature Review and a Call for Research and Public Dialogue.

作者信息

Meier Emily A, Gallegos Jarred V, Thomas Lori P Montross, Depp Colin A, Irwin Scott A, Jeste Dilip V

机构信息

Department of Psychiatry, Moores Cancer Center, Psychiatry & Psychosocial Services, La Jolla, CA; Sam and Rose Stein Institute for Research on Aging, Moores Cancer Center, Psychiatry & Psychosocial Services, La Jolla, CA; Patient & Family Support Services, University of California, San Diego, La Jolla, CA.

Department of Psychiatry, Moores Cancer Center, Psychiatry & Psychosocial Services, La Jolla, CA; Sam and Rose Stein Institute for Research on Aging, Moores Cancer Center, Psychiatry & Psychosocial Services, La Jolla, CA; Patient & Family Support Services, University of California, San Diego, La Jolla, CA; Department of Family Medicine and Public Health, University of California, San Diego, La Jolla, CA.

出版信息

Am J Geriatr Psychiatry. 2016 Apr;24(4):261-71. doi: 10.1016/j.jagp.2016.01.135. Epub 2016 Jan 22.

Abstract

There is little agreement about what constitutes good death or successful dying. The authors conducted a literature search for published, English-language, peer-reviewed reports of qualitative and quantitative studies that provided a definition of a good death. Stakeholders in these articles included patients, prebereaved and bereaved family members, and healthcare providers (HCPs). Definitions found were categorized into core themes and subthemes, and the frequency of each theme was determined by stakeholder (patients, family, HCPs) perspectives. Thirty-six studies met eligibility criteria, with 50% of patient perspective articles including individuals over age 60 years. We identified 11 core themes of good death: preferences for a specific dying process, pain-free status, religiosity/spirituality, emotional well-being, life completion, treatment preferences, dignity, family, quality of life, relationship with HCP, and other. The top three themes across all stakeholder groups were preferences for dying process (94% of reports), pain-free status (81%), and emotional well-being (64%). However, some discrepancies among the respondent groups were noted in the core themes: Family perspectives included life completion (80%), quality of life (70%), dignity (70%), and presence of family (70%) more frequently than did patient perspectives regarding those items (35%-55% each). In contrast, religiosity/spirituality was reported somewhat more often in patient perspectives (65%) than in family perspectives (50%). Taking into account the limitations of the literature, further research is needed on the impact of divergent perspectives on end-of-life care. Dialogues among the stakeholders for each individual must occur to ensure a good death from the most critical viewpoint-the patient's.

摘要

对于什么构成善终或成功离世,人们几乎没有达成共识。作者对已发表的、英文的、经过同行评审的定性和定量研究报告进行了文献检索,这些研究给出了善终的定义。这些文章中的利益相关者包括患者、丧亲前和丧亲后的家庭成员以及医疗服务提供者(HCPs)。所找到的定义被归类为核心主题和子主题,并根据利益相关者(患者、家庭、HCPs)的观点确定每个主题出现的频率。三十六项研究符合纳入标准,其中50%的患者视角文章纳入了60岁以上的个体。我们确定了善终的11个核心主题:对特定死亡过程的偏好、无痛状态、宗教信仰/精神性、情绪健康、生命圆满、治疗偏好、尊严、家庭、生活质量、与HCP的关系以及其他。所有利益相关者群体中排名前三的主题是对死亡过程的偏好(94%的报告)、无痛状态(81%)和情绪健康(64%)。然而,在核心主题方面,不同回应群体之间存在一些差异:家庭视角比患者视角更频繁地提及生命圆满(80%)、生活质量(70%)、尊严(70%)和家人陪伴(70%)(患者视角中这些项目的提及率分别为35%-55%)。相比之下,宗教信仰/精神性在患者视角(65%)中的提及频率略高于家庭视角(50%)。考虑到文献的局限性,需要进一步研究不同视角对临终关怀的影响。必须针对每个个体在利益相关者之间进行对话,以从最关键的视角——患者的视角确保善终。

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