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体验极度产妇发病率的生活质量感知和赋予的意义:一项定性研究。

Perceived quality of life and meanings attributed to the experience of extreme maternal morbidity: a qualitative study.

机构信息

Escuela de Salud Pública, Universidad del Valle. Calle 13 # 100-00. Cali Colombia.

Facultad de Salud, Universidad Santiago de Cali. Cali Colombia.

出版信息

Cien Saude Colet. 2022 May;27(5):1703-1712. doi: 10.1590/1413-81232022275.24032021. Epub 2021 Nov 16.

DOI:10.1590/1413-81232022275.24032021
PMID:35544800
Abstract

Experiencing extreme maternal morbidity (EMM) implies multiple changes, where the perception of quality of life is modified, generating a gap between what is perceived and what is desired. The aim is to understand the meanings attributed to EMM by survivors of the experience and the effect of these meanings on the processes of reconstruction of daily life. A qualitative study from the perspective of symbolic interactionism that included an analysis based on elements of grounded theory by conducting semi-structured interviews with women from a Colombian city. The experience of EMM is understood by the participants as "a suffering that is worthwhile" and is constructed from the meanings given to each stage that is experienced: (1) pregnancy: an unexpected event that is better when accompanied by a partner/family; (2) the complication: separation distress; (3) life after near-death. Women's perception of quality of life depends on both the experience of the event and social support, as well as on the baby's survival. The role of health services is critical because loneliness, worry, and stress intensify when health personnel have a dehumanized relationship with women.

摘要

经历极端围产期发病率(EMM)意味着多种变化,其中生活质量的感知发生了变化,导致感知到的和期望的之间存在差距。目的是了解经历过这种情况的幸存者赋予 EMM 的意义,以及这些意义对日常生活重建过程的影响。这是一项从符号互动主义角度出发的定性研究,包括对哥伦比亚城市的女性进行半结构化访谈,并基于扎根理论的要素进行分析。参与者将 EMM 的经历理解为“一种值得的痛苦”,并从经历的每个阶段赋予的意义中构建:(1)怀孕:意外事件,当有伴侣/家人陪伴时会更好;(2)并发症:分离痛苦;(3)濒死体验后的生活。女性对生活质量的感知取决于事件的经历和社会支持,以及婴儿的存活。卫生服务的作用至关重要,因为当卫生人员与女性建立非人性化关系时,孤独、担忧和压力会加剧。

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