Universidade Estadual do Paraná (UNESPAR). Paranavaí, Paraná Brasil.
Universidade Estadual de Maringá (UEM). Maringá, Paraná, Brasil.
Rev Gaucha Enferm. 2024 Aug 16;45:e20230141. doi: 10.1590/1983-1447.2024.20230141.en. eCollection 2024.
To understand the meanings attributed to pregnancy in the context of Lupus and antiphospholipid syndrome by women and healthcare professionals.
Qualitative research, using Symbolic Interactionism as a theoretical framework and Grounded Theory, a constructivist perspective. Data were collected between January and August 2022, through online interviews with 27 women with Lupus located on the social network Facebook and in-person or remote interviews with 12 healthcare professionals.
The theoretical model constructed has two categories: "Equal conditions, distinct experiences: experiencing the gestational process" shows that obstetric complications and lack of connection with healthcare professionals trigger negative meanings to the experience; and "Therapeutic management interfering in the attribution of meanings to the experience", demonstrates that the way women interact with healthcare professionals and how they manage treatment favors a positive reframing.
The meanings attributed to pregnancy are elaborated and modified according to the interpretation of previous and current experiences, healthcare trajectory and interactions with healthcare professionals. Previous guidance, planning, bonding and trust in healthcare professionals enable positive meanings, while obstetric complications, unqualified assistance and lack of bonding with professionals provide negative meanings.
了解女性和医疗保健专业人员在狼疮和抗磷脂综合征背景下赋予妊娠的意义。
定性研究，采用符号互动论作为理论框架和扎根理论作为建构主义视角。数据于 2022 年 1 月至 8 月期间通过在线访谈收集，访谈对象为 27 名在 Facebook 社交网络上的狼疮女性患者，以及 12 名医疗保健专业人员的现场或远程访谈。
构建的理论模型有两个类别：“平等条件，不同经历：体验妊娠过程”表明产科并发症和与医疗保健专业人员缺乏联系会引发对经历的负面意义；“治疗管理干预对经历的意义归因”表明，女性与医疗保健专业人员的互动方式以及她们管理治疗的方式有利于积极的重新构建。
根据对先前和当前经历、医疗轨迹和与医疗保健专业人员互动的解释，赋予妊娠的意义得到了阐述和修改。先前的指导、计划、联系和对医疗保健专业人员的信任可以带来积极的意义，而产科并发症、不合格的帮助和与专业人员的联系缺乏则会带来负面意义。
