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将患者报告的结果纳入常规护理中:对新南威尔士州两个地方卫生区的癌症患者进行审计,以了解他们的能力和偏好。

Implementing patient-reported outcomes into routine care: an audit of cancer patients from two local health districts in New South Wales to understand their capabilities and preferences.

机构信息

Ingham Institute for Applied Medical Research, Liverpool, NSW 1871, Australia; and South Western Sydney Clinical School, UNSW Medicine and Health, UNSW Sydney, Kensington, NSW 2052, Australia; and Present address: Faculty of Medicine and Health, School of Medical Sciences, Biomedical Informatics and Digital Health, The University of Sydney, Camperdown, NSW 2006, Australia.

Wollongong Hospital, Illawarra Shoalhaven Local Health District, Wollongong, NSW 2500, Australia.

出版信息

Aust Health Rev. 2022 Jun;46(3):331-337. doi: 10.1071/AH21270.

Abstract

Objective It has been established that the implementation of patient-reported outcome measures (PROMs) in routine care provides significant benefits to patients, providers and health services. However, there are patient-level barriers that must be identified and addressed for the successful implementation of PROMs. This study aimed to understand the capabilities and preferences of our cancer patient population prior to implementation of electronically collected PROMs (ePROMs). Specifically, we conducted a clinic audit to determine the proportion of patients in clinics with access to out-of-clinic internet; those preferring to complete PROMs on paper or via an electronic device; those capable of completing PROMs in English; and those anticipating requiring assistance to complete PROMs. Methods Patients receiving cancer treatment or follow-up care at two Local Health Districts (LHDs) in New South Wales, Australia, completed a questionnaire (audit form) with items about internet and mobile access, communication preferences and assistance needed to complete PROMs. Participant demographic and treatment information were extracted from their electronic medical records. Results Across both LHDs, 637 of 1668 participants (38%) completed the audit forms. Mean participant age was 65 years (range = 23-98), 53% were female, and 92% were outpatients. Patients in the two LHDs differed in their levels of internet and email access, and ability to complete PROMs independently in English, suggesting that some LHD-specific tailoring of implementation strategies is necessary to optimise ePROMs uptake. Conclusion This study highlights the importance of understanding the specific local contexts and patient populations, including potential technology and language barriers, which can influence patient ability to complete ePROMs.

摘要

目的

已证实,在常规护理中实施患者报告结局测量(PROMs)可为患者、医护人员和医疗服务带来显著益处。然而,为了成功实施 PROMs,必须确定并解决患者层面的障碍。本研究旨在了解我们的癌症患者群体在实施电子采集的 PROMs(ePROMs)之前的能力和偏好。具体而言,我们进行了一次临床审计,以确定有多少患者在诊所中能够访问门诊外的互联网;那些更愿意通过纸质或电子设备完成 PROMs 的患者;那些能够用英语完成 PROMs 的患者;以及那些预计需要帮助才能完成 PROMs 的患者。

方法

在澳大利亚新南威尔士州的两个地方卫生区(LHDs)接受癌症治疗或随访护理的患者,完成了一份包含有关互联网和移动访问、沟通偏好以及完成 PROMs 所需帮助的问卷(审计表)。参与者的人口统计学和治疗信息从他们的电子病历中提取。

结果

在两个 LHD 中,共有 1668 名参与者中的 637 名(38%)完成了审计表。参与者的平均年龄为 65 岁(范围 23-98 岁),53%为女性,92%为门诊患者。两个 LHD 之间的患者在互联网和电子邮件访问水平以及独立用英语完成 PROMs 的能力方面存在差异,这表明需要针对特定 LHD 实施策略进行调整,以优化 ePROMs 的采用率。

结论

本研究强调了了解特定的当地背景和患者群体的重要性,包括潜在的技术和语言障碍,这些因素可能会影响患者完成 ePROMs 的能力。

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