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患有晚期癌症的青少年和青年丧亲父母的悲伤轨迹:一项采用现象学的定性分析

Grief Trajectories of Bereaved Parents of Adolescents and Young Adults With Advanced Cancer: A Qualitative Analysis Using Phenomenology.

作者信息

Kingsley Jenny, Taylor Mallory, Bogetz Jori F, Trowbridge Amy, Rosenberg Abby R, Barton Krysta S

机构信息

Department of Anesthesiology and Critical Care Medicine, Children's Hospital Los Angeles, CA, USA.

Department of Pediatrics, University of Washington School of Medicine, Seattle, WA, USA.

出版信息

Omega (Westport). 2024 Nov;90(1):275-301. doi: 10.1177/00302228221101705. Epub 2022 May 15.

Abstract

Different parents grieve differently. However, research directed at understanding the important contextual or individual factors that influence the path each bereaved parent takes is lacking. In this qualitative analysis we seek to understand the array of bereaved parent experiences more completely. By deeply diving into one parent dyad using interpretive phenomenology analysis and situating that story within the conventional content analysis of 13 other bereaved parents of adolescents and young adults (AYAs) who died from advanced cancer, we illustrate the roles of religion/spirituality, maintaining a connection, and fulfilling parental roles as elements of grief processing. Clinicians and investigators should consider similar individualized approaches to understanding and supporting the grief experiences of bereaved parents before and after the death of a child.

摘要

不同的父母悲伤的方式各不相同。然而,针对理解影响每位丧亲父母所走道路的重要背景或个人因素的研究却很匮乏。在这项定性分析中,我们试图更全面地了解丧亲父母的各种经历。通过运用解释现象学分析法深入探究一对父母的故事,并将该故事置于对另外13位因晚期癌症去世的青少年和青年(AYA)丧亲父母的传统内容分析之中,我们阐述了宗教/灵性、保持联系以及履行父母角色在悲伤处理过程中的作用。临床医生和研究人员在孩子去世前后,应考虑采用类似的个性化方法来理解和支持丧亲父母的悲伤经历。

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