Department of Science and Technology Studies, University of Vienna, Vienna, Austria.
Stud Health Technol Inform. 2022 May 16;293:127-136. doi: 10.3233/SHTI220359.
Digital health solutions have been omnipresent in policy agendas. However, we still need to better understand how citizens experience these developments and, more specifically, how citizens would ideally want such solutions to look like.
We explore the needs and concerns citizens expressed in different phases of the co-creation process for a prototype of a citizen-centred health data platform within a large-scale European project: Smart4Health.
We follow a qualitative approach in our analysis of 9 discussion groups in addition to a diverse set of 49 qualitative interviews with citizens and health care professionals.
We show how citizens identify the positive potential of health data infrastructures and how they relate digital health to wider developments in contemporary societies. We then outline citizens' concerns that potentially prevent them from becoming users and thus destabilize the policy vision of digital health.
Four preconditions need to be met for citizens to find their place within a digital health data environment: transparency/trust, infrastructural literacy, digital justice, and a careful consideration of the distribution of responsibilities.
数字健康解决方案在政策议程中无处不在。然而，我们仍然需要更好地了解公民如何体验这些发展，更具体地说，公民希望这些解决方案理想地是什么样子。
我们在一个大型欧洲项目“Smart4Health”中探索了公民在共同创造原型公民为中心的健康数据平台过程的不同阶段表达的需求和关注点。
我们通过对 9 个讨论小组的分析以及对公民和医疗保健专业人员的 49 个定性访谈的多元化集合，采用定性方法进行分析。
我们展示了公民如何识别健康数据基础设施的积极潜力，以及他们如何将数字健康与当代社会的更广泛发展联系起来。然后，我们概述了公民的担忧，这些担忧可能会阻止他们成为用户，从而破坏数字健康的政策愿景。
要使公民在数字健康数据环境中找到自己的位置，需要满足四个前提条件：透明度/信任、基础设施素养、数字正义以及仔细考虑责任的分配。
