Department of Nursing, The University of Tennessee - Martin, Parsons, TN, USA.
Jacques Mohr Endowed Professor Gerontological Nursing, MGH Institute of Health, Boston, MA, USA.
J Palliat Care. 2023 Jan;38(1):71-77. doi: 10.1177/08258597221098124. Epub 2022 May 22.
This study mapped research evidence spanning the last 10 years to identify the effect of being a surrogate decision maker for an incapacitated adult. A scoping review strategy was employed to allow for a focus on the breadth of the effect of surrogate decision making and to identify gaps in the existing research literature. Surrogate decision making created emotional distress and burden for the majority of the SDMs. We found the negative effects on SDMs were linked to variety of stressors: fear of not knowing what the patient would want or being unable to fulfill the patient's actual or perceived wishes, feeling unprepared to assume the role of a SDM, and watching a loved one's health deteriorate over time. Additional research is needed to elucidate the emotional burden of culturally diverse SDMs to determine their differences when compared to various groups.
本研究通过对过去 10 年的研究证据进行分析，旨在确定作为失能成年人的代理人对其产生的影响。采用范围综述策略，以便关注代理决策对代理人产生影响的广度，并确定现有研究文献中的空白。代理决策会给大多数代理人带来情绪困扰和负担。我们发现，对代理人的负面影响与各种压力源有关：担心不知道患者想要什么，或者无法满足患者的实际或感知的愿望，对担任代理人的角色没有准备，以及看着亲人的健康状况逐渐恶化。需要进一步的研究来阐明文化背景不同的代理人的情绪负担，以确定与不同群体相比，他们的差异。
