Centre for Clinical and Community Applications of Health Psychology, Faculty of Environmental and Life Sciences, University of Southampton, Southampton, UK
Primary Care, Population Science and Medical Education, Faculty of Medicine, University of Southampton, Southampton, UK.
BMJ Open. 2021 Jan 6;11(1):e044005. doi: 10.1136/bmjopen-2020-044005.
To explore young people's experiences of eczema self-management and interacting with health professionals.
Secondary qualitative data analysis of data sets from two semistructured interview studies. Data were analysed using inductive thematic analysis.
Participants were recruited from the UK primary care, dermatology departments and a community-based sample (eg, patient representative groups, social media).
Data included 28 interviews with young people with eczema aged 13-25 years (mean age=19.5 years; 20 female).
Although topical treatments were generally perceived as effective, young people expressed doubts about their long-term effectiveness, and concerns around the safety and an over-reliance on topical corticosteroids. Participants welcomed the opportunity to take an active role in their eczema management, but new roles and responsibilities also came with initial apprehension and challenges, including communicating their treatment concerns and preferences with health professionals, feeling unprepared for transition to an adult clinic and obtaining treatments. Decisions regarding whether to engage in behaviours that would exacerbate their eczema (eg, irritants/triggers, scratching) were influenced by young people's beliefs regarding negative consequences of these behaviours, and perceived control over the behaviour and its negative consequences.
Behavioural change interventions must address the treatment concerns of young people and equip them with the knowledge, skills and confidence to take an active role in their own eczema management.
探索年轻人在湿疹自我管理方面的经验，以及他们与卫生专业人员的互动情况。
对两项半结构式访谈研究数据集的二次定性数据分析。使用归纳主题分析对数据进行分析。
参与者是从英国初级保健、皮肤科部门和社区样本（例如，患者代表团体、社交媒体）中招募的。
数据包括 28 名 13-25 岁患有湿疹的年轻人（平均年龄 19.5 岁；20 名女性）的访谈。
尽管局部治疗通常被认为是有效的，但年轻人对其长期效果表示怀疑，并对安全性和过度依赖皮质类固醇类药物表示担忧。参与者欢迎有机会在湿疹管理中发挥积极作用，但新的角色和责任也带来了最初的担忧和挑战，包括与卫生专业人员沟通他们的治疗关注点和偏好、对过渡到成人诊所和获得治疗感到准备不足。关于是否参与会加重湿疹的行为（例如，刺激物/触发因素、搔抓）的决定受到年轻人对这些行为的负面后果的信念的影响，以及对行为及其负面后果的控制感。
行为改变干预措施必须解决年轻人的治疗关注点，并为他们提供知识、技能和信心，使其能够积极参与自己的湿疹管理。
