Bito Seiji, Hayashi Yachie, Fujita Takanori, Yonemura Shigeto
Division of Clinical Epidemiology, National Hospital Organization Tokyo Medical Center, Tokyo, Japan.
Department of Health Policy Management, Keio University School of Medicine, Tokyo, Japan.
JMIR Form Res. 2022 Jul 20;6(7):e37720. doi: 10.2196/37720.
It is expected that personal health information collected through mobile information terminals will be used to develop health strategies that benefit the public. Against this background, several countries have actively attempted to use mobile phones to control infectious diseases. These collected data, such as activity logs and contact history, are countermeasures against diseases such as COVID-19. In Japan, the Ministry of Health, Labor, and Welfare has developed and disseminated a contact-confirming app (COVID-19 Contact-Confirming Application [COCOA]) to the public, which detects and notifies individuals whether they have been near someone who had subsequently tested positive for COVID-19. However, there are concerns about leakage and misuse of the personal information collected by such information terminals.
This study aimed to investigate the possible trade-off between effectiveness in preventing infectious diseases and infringement of personal privacy in COCOA. In addition, we analyzed whether resistance to COCOA would reduce if the app contributed to public health or if a discount was provided on mobile phone charges.
A cross-sectional, quantitative survey of Japanese citizens was conducted using Survey Monkey, a general-purpose web-based survey platform. When developing the questions for the questionnaire, we included the installation status of COCOA and recorded the anxiety stemming from the potential leakage or misuse of personal information collected for COVID-19 infection control. The respondents were asked to rate various factors to determine their perceptions on a 5-point scale.
In total, 1058 participants were included in the final analysis. In response to the question of whether the spread of the disease was being controlled by the infection control measures taken by the government, 25.71% (272/1058) of the respondents answered that they strongly agreed or agreed. One-quarter of the respondents indicated that they had already installed COCOA. This study found that the sense of resistance to government intervention was not alleviated by the benefits provided to individuals when using the app. The only factors that were positively associated with the response absolutely opposed to use of the app, even with a discount on mobile phone use charges, were those regarding leaks and misuse of personal information, which was true for all functions (function A: odds ratio [OR] 1.8, 95% CI 1.3-2.4; function B: OR 1.9, 95% CI 1.5-2.6; function C: OR 1.8, 95% CI 1.4-2.4).
Public organizations need to emphasize the general benefits of allowing them to manage personal information and assure users that this information is being managed safely rather than offering incentives to individuals to provide such personal information. When collecting and using citizens' health information, it is essential that governments and other entities focus on contributing to the public good and ensuring safety rather than returning benefits to individual citizens.
预计通过移动信息终端收集的个人健康信息将用于制定造福公众的健康策略。在此背景下,一些国家积极尝试使用手机来控制传染病。这些收集到的数据,如活动日志和接触史,是应对 COVID-19 等疾病的对策。在日本,厚生劳动省已开发并向公众发布了一款接触确认应用程序(COVID-19 接触确认应用程序 [COCOA]),该程序可检测并通知个人是否曾与后来检测出 COVID-19 呈阳性的人接近。然而,人们担心此类信息终端收集的个人信息会被泄露和滥用。
本研究旨在调查 COCOA 在预防传染病有效性与侵犯个人隐私之间可能存在的权衡。此外,我们分析了如果该应用程序对公共卫生有贡献或提供手机费用折扣,对 COCOA 的抵触情绪是否会降低。
使用通用的基于网络的调查平台 Survey Monkey 对日本公民进行了横断面定量调查。在制定问卷问题时,我们纳入了 COCOA 的安装情况,并记录了因 COVID-19 感染控制收集的个人信息可能被泄露或滥用而产生的焦虑。要求受访者对各种因素进行评分,以确定他们在 5 分制量表上的看法。
最终分析共纳入 1058 名参与者。在回答政府采取的感染控制措施是否正在控制疾病传播的问题时,25.71%(272/1058)的受访者回答他们强烈同意或同意。四分之一的受访者表示他们已经安装了 COCOA。本研究发现,使用该应用程序时给予个人的好处并未减轻对政府干预的抵触情绪。即使手机使用费用有折扣,与绝对反对使用该应用程序的回答呈正相关的唯一因素是那些关于个人信息泄露和滥用的因素,所有功能均如此(功能 A:优势比 [OR] 1.8,95%置信区间 1.3 - 2.4;功能 B:OR 1.9,95%置信区间 1.5 - 2.6;功能 C:OR 1.8,95%置信区间 1.4 - 2.4)。
公共组织需要强调允许他们管理个人信息的总体好处,并向用户保证此类信息正在安全管理,而不是向个人提供激励措施以获取此类个人信息。在收集和使用公民健康信息时,政府和其他实体必须专注于为公共利益做出贡献并确保安全,而不是回馈个人公民。