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整合各方观点:一项定性研究,探讨患有多种疾病的患者、医护人员、亲属及患者权益倡导者对自我管理和运动行为的看法。

Putting the pieces together: A qualitative study exploring perspectives on self-management and exercise behavior among people living with multimorbidity, healthcare professionals, relatives, and patient advocates.

作者信息

Jäger Madalina, Lindhardt Mathias Constantin, Pedersen Julie Rønne, Dideriksen Mette, Nyberg Mette, Bricca Alessio, Bodtger Uffe, Midtgaard Julie, Skou Søren T

机构信息

Department of Sports Science and Clinical Biomechanics, University of Southern Denmark, Odense M, Denmark.

Department of Physiotherapy and Occupational Therapy, Næstved-Slagelse-Ringsted Hospitals, Region Zealand, Slagelse, Denmark.

出版信息

J Multimorb Comorb. 2022 May 20;12:26335565221100172. doi: 10.1177/26335565221100172. eCollection 2022.

Abstract

Background Behavior change and exercise are considered critical for successful self-management in people with multimorbidity, however, little is known about people's needs, experiences, and preferences. Purpose The aim of this study was to qualitatively explore the perspectives of people living with multimorbidity, healthcare professionals, relatives, and patient advocates in relation to self-management and exercise behavior. Research design Analysis was carried out by means of a hybrid inductive-deductive approach using Framework Analysis that enabled the subsequent use of the COM-B model in relation to the study of exercise behavior specifically. Study sample We conducted 17 interviews (9 focus groups; 8 key informants) with 48 informants from four groups (22 people living with multimorbidity, 17 healthcare professionals, 5 relatives, and 5 patient advocates). Data analysis Through an inductive Framework analysis, we constructed three themes: Patient education, supporting behavior change, and lack of a "burning platform." Subsequent deductive application of the COM-B profile (applied solely to data related to exercise behavior) unveiled a variety of barriers to exercise and self-management support (pain, fatigue, breathlessness, lack of motivation, financial issues, accessibility, decreased social support). Results Overall, the four groups shared common understandings while also expressing unique challenges. Conclusions Future interventions and/or policies targeting exercise behavior in people living with multimorbidity should address some of the barriers identified in this study.

摘要

背景

行为改变和运动被认为是患有多种疾病的人成功进行自我管理的关键,然而,人们对他们的需求、经历和偏好知之甚少。目的:本研究的目的是定性地探索患有多种疾病的人、医疗保健专业人员、亲属和患者倡导者对自我管理和运动行为的看法。研究设计:采用混合归纳-演绎方法,通过框架分析进行分析,这使得后续能够在专门研究运动行为时使用COM-B模型。研究样本:我们对来自四组的48名受访者进行了17次访谈(9个焦点小组;8名关键信息提供者)(22名患有多种疾病的人、17名医疗保健专业人员、5名亲属和5名患者倡导者)。数据分析:通过归纳性框架分析,我们构建了三个主题:患者教育、支持行为改变和缺乏“迫切需求”。随后对COM-B概况的演绎应用(仅应用于与运动行为相关的数据)揭示了运动和自我管理支持的各种障碍(疼痛、疲劳、呼吸急促、缺乏动力、财务问题、可及性、社会支持减少)。结果:总体而言,这四组有共同的理解,同时也表达了独特的挑战。结论:未来针对患有多种疾病的人的运动行为的干预措施和/或政策应解决本研究中确定的一些障碍。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96aa/9125109/13a02c2893d8/10.1177_26335565221100172-fig1.jpg

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