Anderson Elizabeth, Twiggs Caroline, Goins R Turner, Astleford Nina, Winchester Blythe
Department of Social Work, College of Health and Human Sciences, Western Carolina University, Cullowhee, North Carolina, USA.
Mars Hill University, Community Engagement, Mars Hill, North Carolina, USA.
J Palliat Med. 2022 Dec;25(12):1810-1817. doi: 10.1089/jpm.2021.0612. Epub 2022 May 26.
American Indians with chronic kidney disease are twice as likely to develop end-stage renal disease. Palliative care is underused by American Indian patients, although studies show it is not due to an unwillingness to engage in conversations about end of life. The aim of our study was to explore the experiences and beliefs of Nephrology and palliative care providers of one tribal community with respect to engaging patients and family members in palliative care. Using an interview guide, individual, in-depth interviews were conducted between March and August 2019 with eligible participants. We used constant comparative analysis of interview transcripts. Our study sample included eight participants, including four Nephrology providers and four palliative care providers. We identified five themes, including (1) providers' stereotypes, (2) patients' mistrust of providers, (3) patients' end-of-life preferences, (4) available community resources, and (5) patients' family dynamics. Negative stereotypes were present in every theme, although most participants did not acknowledge the role stereotypes played in establishing trust and building therapeutic relationships conducive to end-of-life discussions. Providers serving American Indian patients with kidney disease should consider training in trauma informed care and cultural sensitivity. Negative stereotypes of American Indian patients may impact provider's ability to build trust, a key component of end-of-life conversations, and contribute to misperceptions related to family dynamics, end-of-life preferences, and available community resources.
患有慢性肾病的美国印第安人发展为终末期肾病的可能性是其他人的两倍。美国印第安患者对姑息治疗的使用率较低,尽管研究表明这并非由于他们不愿参与关于临终问题的对话。我们研究的目的是探讨一个部落社区的肾脏病学和姑息治疗提供者在让患者及其家庭成员参与姑息治疗方面的经历和信念。2019年3月至8月期间,我们使用访谈指南对符合条件的参与者进行了个人深度访谈。我们对访谈记录进行了持续比较分析。我们的研究样本包括8名参与者,其中有4名肾脏病学提供者和4名姑息治疗提供者。我们确定了五个主题,包括:(1)提供者的刻板印象;(2)患者对提供者的不信任;(3)患者的临终偏好;(4)可用的社区资源;(5)患者的家庭动态。每个主题中都存在负面刻板印象,尽管大多数参与者没有意识到刻板印象在建立信任以及建立有利于临终讨论的治疗关系中所起的作用。为患有肾病的美国印第安患者提供服务的提供者应考虑接受创伤知情护理和文化敏感性方面的培训。对美国印第安患者的负面刻板印象可能会影响提供者建立信任的能力,而信任是临终对话的关键组成部分,还可能导致对家庭动态、临终偏好和可用社区资源的误解。