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AMA J Ethics. 2021 Jun 1;23(6):E446-455. doi: 10.1001/amajethics.2021.446.
3
Interventions to improve cancer survivorship among Indigenous Peoples and communities: a systematic review with a narrative synthesis.改善原住民和社区癌症患者生存状况的干预措施:系统评价与叙述性综合。
Support Care Cancer. 2021 Nov;29(11):7029-7048. doi: 10.1007/s00520-021-06216-7. Epub 2021 May 24.
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Spirituality, Quality of Life, and End of Life Among Indigenous Peoples: A Scoping Review.原住民的精神性、生活质量与生命末期:一项范围综述
J Transcult Nurs. 2021 Mar;32(2):161-172. doi: 10.1177/1043659620952524. Epub 2020 Aug 27.
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Developing and Testing the Feasibility of a Culturally Based Tele-Palliative Care Consult Based on the Cultural Values and Preferences of Southern, Rural African American and White Community Members: A Program by and for the Community.基于美国南部农村非裔美国人和白人社区成员的文化价值观与偏好,开发并测试一种基于文化的远程姑息治疗咨询服务的可行性:一项由社区开展并为社区服务的项目。
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Psychosocial Aspects of Delivering Cancer Care to Indigenous People: An Overview.为原住民提供癌症护理的社会心理因素:概述
JCO Glob Oncol. 2020 Feb;6:148-154. doi: 10.1200/JGO.19.00130.
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Social Determinants of American Indian Nutritional Health.美国印第安人营养健康的社会决定因素
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The Impact of Individual and Parental American Indian Boarding School Attendance on Chronic Physical Health of Northern Plains Tribes.个人及父母曾就读美洲印第安寄宿学校对北部平原部落慢性身体健康的影响。
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《唤回灵魂:大平原美洲原住民的精神需求》

"Calling the Spirit Back:" Spiritual Needs Among Great Plains American Indians.

机构信息

South Dakota State University, College of Nursing (M.J.I.), Rapid City, South Dakota, USA.

Great Plains Tribal Leaders Health Board (T.D., G.J., S.J.), Rapid City, South Dakota, USA.

出版信息

J Pain Symptom Manage. 2022 Sep;64(3):268-275. doi: 10.1016/j.jpainsymman.2022.05.014. Epub 2022 May 23.

DOI:10.1016/j.jpainsymman.2022.05.014
PMID:35618248
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9378634/
Abstract

CONTEXT

American Indians (AIs) are disproportionately affected by serious illness such as cancer. Colonization, cultural genocide, and trauma have adversely affected AIs' ability to attain health and well-being, and in many cases led to the loss of the right to practice traditional ceremonies and rituals. Still many AIs describe well-being as being rooted in spirituality.

OBJECTIVES

The purpose of this project was to learn about the perspectives of AI cancer survivors, caregivers, and Tribal leaders and healers specific to spirituality while on the cancer journey.

METHODS

Qualitative interviews and Indigenous talking circle methodologies were used to explore AIs cancer survivors, caregivers, and Tribal leaders and healers' perspectives on spirituality while on the cancer journey. A data analysis team consisting of AI and non-AI members analyzed the narrative data.

RESULTS

Qualitative analysis of interviews and talking circles revealed 4 major themes related to spirituality: the chasm of colonialism, coexistence of Traditional and Christian religions, calling the Spirit back, and prayer as sacred energy.

CONCLUSION

It is critical that clinicians caring for AIs with serious illness seek to understand their patients' spiritual beliefs about disease treatment and death and work with them and their families to support quality of life throughout their illness journey. In addition, clinicians must recognize the systemic racism inherent in our healthcare systems, and dismantle cultural clashes and bias for all patients, particularly AIs, who have long suffered from poorer health outcomes.

摘要

背景

美洲原住民(AIs)受到癌症等严重疾病的影响不成比例。殖民化、文化灭绝和创伤严重影响了 AIs 获得健康和福祉的能力,在许多情况下,还导致他们失去了实践传统仪式和仪式的权利。尽管如此,许多 AIs 仍将幸福感描述为根植于精神层面。

目的

本项目旨在了解 AI 癌症幸存者、护理人员和部落领袖和治疗师在癌症之旅中与精神层面相关的观点。

方法

采用定性访谈和本土谈话圈方法,探讨 AI 癌症幸存者、护理人员和部落领袖和治疗师在癌症之旅中对精神层面的看法。一个由 AI 和非 AI 成员组成的数据分析团队对叙事数据进行了分析。

结果

对访谈和谈话圈的定性分析揭示了与精神层面相关的 4 个主要主题:殖民主义的鸿沟、传统和基督教宗教的共存、召唤精神回归,以及作为神圣能量的祈祷。

结论

照顾患有严重疾病的 AIs 的临床医生必须努力了解他们的患者对疾病治疗和死亡的精神信仰,并与他们及其家人合作,在整个疾病过程中支持他们的生活质量。此外,临床医生必须认识到我们的医疗保健系统中固有的种族主义,消除文化冲突和对所有患者的偏见,特别是 AIs,他们长期以来一直遭受较差的健康结果。