Kathy Sheppard-Jones, Harold Kleinert, and Laura Butler, University of Kentucky Human Development Institute.
Jian Li, Kent State University.
Intellect Dev Disabil. 2022 Jun 1;60(3):246-255. doi: 10.1352/1934-9556-60.3.246.
This study reports on the results of an online survey of direct support professionals (DSPs) during the COVID-19 pandemic in June 2020 to measure their perceived quality of life, stressors, coping/resilience skills, and knowledge of health care rights directly related to the pandemic for the persons that they support. Specifically, we examined direct support workers' perceptions of their quality of life, levels of stress, and their self-reported resilience skills. We found that perceived stress was strongly correlated with both self-reported quality of life and resilience, but not with years of DSP experience. Moreover, while DSPs overwhelmingly knew and affirmed health care rights for people with disabilities, they were less knowledgeable about their legal rights during hospital stays.
本研究报告了 2020 年 6 月 COVID-19 大流行期间对直接支持专业人员(DSP)进行的在线调查结果,以衡量他们对与其所支持人员直接相关的大流行期间的生活质量、压力源、应对/适应能力和医疗保健权利的认知。具体而言,我们研究了直接支持工作者对自己生活质量、压力水平和自我报告的适应能力的看法。我们发现,感知到的压力与自我报告的生活质量和适应能力密切相关,但与 DSP 工作经验年限无关。此外,尽管 DSP 们非常了解并肯定残疾人的医疗保健权利,但他们对住院期间的合法权利了解较少。