**新冠疫情对智力障碍患者亲属生活质量的影响：一项纵向研究。**
Effects of the COVID-19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study.
机构信息
Department Perspective of patients and clients in healthcare, Netherlands Institute for Health Services Research (Nivel), Utrecht, the Netherlands.
出版信息
J Appl Res Intellect Disabil. 2023 Jan;36(1):68-77. doi: 10.1111/jar.13035. Epub 2022 Sep 22.
BACKGROUND
The COVID-19 pandemic poses risks to the quality of life (QoL) of relatives of individuals with intellectual disabilities. This paper investigates relatives' QoL and associated risk and buffering factors before and during the pandemic.
METHOD
Surveys were administered to three samples of relatives in the Netherlands in 2019 (N = 105) and during the first waves of COVID-19 in June (N = 207) and October 2020 (N = 332). Associations between QoL and care burden, care competence, social support, and resilience, and changes over time were analysed using (logistic) regressions.
RESULTS
No significant changes in overall QoL nor its domains were found. Care burden was negatively associated with QoL and increased during the pandemic. Care competence was lower than in 2019. Competence, social support, and resilience were positively associated with QoL.
CONCLUSIONS
Although relatives' QoL remained stable, the pandemic poses non-negligible risks to their wellbeing. It is, therefore, crucial to provide relatives with adequate support.
背景
COVID-19 大流行给智力障碍患者亲属的生活质量 (QoL)带来风险。本文研究了大流行前和大流行期间亲属的 QoL 及其相关风险和缓冲因素。
方法
在荷兰，于 2019 年（N=105）和 COVID-19 大流行的 6 月（N=207）和 2020 年 10 月（N=332）期间，对三个样本的亲属进行了调查。使用（逻辑）回归分析 QoL 与照护负担、照护能力、社会支持和韧性之间的关联以及随时间的变化。
结果
总体 QoL 及其各领域均无显著变化。照护负担与 QoL 呈负相关，并在大流行期间增加。照护能力低于 2019 年。能力、社会支持和韧性与 QoL 呈正相关。
结论
尽管亲属的 QoL 保持稳定，但大流行给他们的幸福感带来了不可忽视的风险。因此，为亲属提供足够的支持至关重要。
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