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苏丹喀土穆州镰状细胞病和糖尿病对患儿及其父母的心理社会影响。

Psychosocial Impact of Sickle Cell Disease and Diabetes Mellitus on Affected Children and Their Parents in Khartoum State, Sudan.

机构信息

Nursing Department, Prince Sultan Military College of Health Sciences, Dhahran, Saudi Arabia.

Psychiatric Department, Faculty of Medicine, University of Khartoum, Khartoum, Sudan.

出版信息

J Trop Pediatr. 2022 Apr 5;68(3). doi: 10.1093/tropej/fmac042.

DOI:10.1093/tropej/fmac042
PMID:35641127
Abstract

This study aimed to assess the psychosocial impact of sickle cell disease (SCD) and diabetes mellitus on children and their parents in Sudan, and the relationship between socioeconomic status and psychosocial issues. A descriptive, cross-sectional study was conducted among n = 320 children aged 6-12 years, of whom n = 170 were diagnosed with SCD, n = 150 children with diabetes mellitus and their parents. The strengths and difficulties questionnaire (SDQ scale) was used to assess the psychosocial aspect of children. Depression, Anxiety, Stress Scale -21 Items (DASS 21) was used to assess the psychological well-being of the caregivers. Data on psychological problems of children with SCD showed that 66.5% had emotional symptoms, 18.2% had conduct problems and 19.4% hyperactivity. Data of parents showed that 45.9% of parents did not experience depression; 27.9% were moderately depressed group. Data on psychological problems among children with diabetes showed that 57.3% experienced emotional symptoms, conduct problems were close to the average among 66%. Data on psychological problems among parents of children with diabetes showed that 45.3% of parents did not experience depression; 22.7% belonged to the moderately depressed group. Psychosocial problems were common both among children and parents. More research is needed in the context of caring for a child with chronic diseases and the role of health care providers in adapting and mitigating psychological problems among both parents and children.

摘要

本研究旨在评估苏丹儿童及其父母的镰状细胞病(SCD)和糖尿病的心理社会影响,以及社会经济地位与心理社会问题之间的关系。一项描述性、横断面研究在 n=320 名 6-12 岁的儿童中进行,其中 n=170 名儿童患有 SCD,n=150 名儿童患有糖尿病及其父母。使用长处和困难问卷(SDQ 量表)评估儿童的心理社会方面。使用抑郁、焦虑和压力量表-21 项(DASS 21)评估照顾者的心理幸福感。SCD 儿童心理问题的数据显示,66.5%的儿童有情绪症状,18.2%的儿童有行为问题,19.4%的儿童有多动症。父母的心理问题数据显示,45.9%的父母没有抑郁;27.9%为中度抑郁组。糖尿病儿童心理问题的数据显示,57.3%的儿童有情绪症状,行为问题接近 66%的平均值。糖尿病儿童父母的心理问题数据显示,45.3%的父母没有抑郁;22.7%属于中度抑郁组。儿童和父母都普遍存在心理社会问题。需要在照顾慢性病儿童的背景下进行更多的研究,并研究医疗保健提供者在适应和减轻父母和儿童双方心理问题方面的作用。

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