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自闭症是一种差异还是一种障碍?探索那些利用同伴主导的在线支持小组来帮助自闭症伴侣的个人的观点。

Autism as a difference or a disorder? Exploring the views of individuals who use peer-led online support groups for autistic partners.

作者信息

Lewis Laura Foran

机构信息

The University of Vermont, USA.

出版信息

Autism. 2023 Feb;27(2):321-330. doi: 10.1177/13623613221097850. Epub 2022 Jun 2.

Abstract

Individuals who use peer-led online support groups for partners of autistics describe diverse views of autism, with some describing autism as a difference and others describing it as a disorder. I conducted online interviews with 162 non-autistics who believed they were in relationships with autistics and who participated in online support groups on social media. I analyzed their responses by constantly comparing each interview to previous interviews to develop a theory about their social experiences. As many as one-third of autistics participate in romantic relationships, and many of their partners seek support through groups on social media. Few studies explore what it is like to be a non-autistic person who is in a relationship with an autistic person. The way that participants viewed autism influenced the way that they viewed themselves, their partners, and their relationships. Many participants who were dissatisfied in their relationships shared that they believed their partners were autistic, but their partners had never been formally evaluated and did not self-identify as autistic. Future research should explore ways that autism labels are (mis)applied by the general public based on negative stereotypes about autism.

摘要

使用针对自闭症患者伴侣的同伴主导在线支持小组的人对自闭症有着不同的看法,有些人将自闭症描述为一种差异,而另一些人则将其描述为一种疾病。我对162名非自闭症患者进行了在线访谈,他们认为自己与自闭症患者处于恋爱关系中,并且参与了社交媒体上的在线支持小组。我通过不断将每次访谈与之前的访谈进行比较来分析他们的回答,以形成一种关于他们社交经历的理论。多达三分之一的自闭症患者参与浪漫关系,他们的许多伴侣通过社交媒体上的小组寻求支持。很少有研究探讨与自闭症患者恋爱的非自闭症患者的感受。参与者看待自闭症的方式影响了他们看待自己、伴侣以及他们关系的方式。许多对自己的关系不满意的参与者表示,他们认为自己的伴侣是自闭症患者,但他们的伴侣从未接受过正式评估,也没有自我认定为自闭症患者。未来的研究应该探索基于对自闭症的负面刻板印象,公众如何(错误地)应用自闭症标签。

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