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从关于自闭症教育和技术应用的两个大规模开放在线课程中探索电子学习社区对自闭症语言和术语使用的反应。

Exploring an e-learning community's response to the language and terminology use in autism from two massive open online courses on autism education and technology use.

机构信息

University of Bath, UK.

King's College London, UK.

出版信息

Autism. 2021 Jul;25(5):1349-1367. doi: 10.1177/1362361320987963. Epub 2021 Feb 11.

DOI:10.1177/1362361320987963
PMID:33567892
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8264622/
Abstract

Within the neurodiversity movement, one recent divergence is in the semantic choice of language when describing autism, as members of the autism and autistic community preferred to use - language (autistic person), whereas professionals were more likely to use language (person with autism). This study explored 803 e-learners' responses from their comments across two massive open online courses on autism education held between 2017 and 2019. Learners agreed that autistic individuals should guide others on which terminology to use when describing autism, and although language acknowledges autism as part of an individual's identity, it can also conjure up negative stereotypes and be stigmatising. Although family, friends and professionals highlighted that the diagnostic label is a way to facilitate understanding across stakeholder groups and help autistic individuals gain access to support, autistic self-advocates found the process of disclosing autism as a form of disability to conflict with their sense of identity, and broader terms such as 'autism spectrum' failed to capture individual strengths and weaknesses. Semantic language choices may matter less as long as the person's difficulties are clearly acknowledged, with adaptations made to meet their specific needs. Adding to a growing body of literature on terminology use in autism research and practice, we highlight that language used when describing autism should follow the autistic individual's lead, with the primary focus on communicating an individual's strengths and difficulties, to foster a sense of positive autism identity and inclusivity, and enable access to appropriate support.

摘要

在神经多样性运动中,最近出现了一种分歧,即在描述自闭症时语言的语义选择,因为自闭症患者和自闭症社区的成员更喜欢使用语言(自闭症患者),而专业人士则更倾向于使用语言(自闭症患者)。本研究探讨了 2017 年至 2019 年间举办的两次自闭症教育大型开放式在线课程中,803 名电子学习者在评论中的反应。学习者们一致认为,自闭症患者应该指导他人在描述自闭症时使用哪种术语,虽然语言承认自闭症是个人身份的一部分,但它也可能会引起负面刻板印象和污名化。尽管家人、朋友和专业人士强调诊断标签是促进利益相关者群体之间理解和帮助自闭症患者获得支持的一种方式,但自闭症自我倡导者发现,将自闭症披露为一种残疾形式与他们的身份认同感相冲突,而“自闭症谱系”等更广泛的术语未能捕捉到个体的强项和弱点。只要清楚地承认一个人的困难,语义语言选择可能就不那么重要了,可以进行调整以满足他们的特定需求。本研究在自闭症研究和实践中术语使用的不断增加的文献基础上进一步强调,在描述自闭症时使用的语言应该遵循自闭症患者的主导,主要重点是传达个体的强项和困难,以培养积极的自闭症身份认同感和包容性,并为他们提供适当的支持。

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