Faculty of Social Work, Central and Northern Alberta Region, University of Calgary, Edmonton, AB, Canada.
Centre for Research on Children and Families, McGill University, Montreal, QC, Canada.
J Intellect Disabil. 2023 Dec;27(4):871-884. doi: 10.1177/17446295221104623. Epub 2022 Jun 2.
The COVID-19 pandemic has imposed unprecedented service interruptions in many sectors including services for children and youth with neuro-developmental disabilities (NDD). We examined the experiences of service providers as they supported this population during the pandemic. Five focus groups were convened with 24 service providers offering support to children/youth with NDD and their families. Results highlight substantial service changes and challenges, as observed by service providers. Service closures and program delivery modification resulted in the rapid adoption of virtual services and reduced program delivery. Service providers have faced heightened workloads, personal weariness and 'burn out', and new levels of conflict at work, yet with little opportunity and support for self-care. Beyond challenges, new learning and growth have emerged, with heightened collaboration amongst organizations. Strains in service delivery during the pandemic have exposed programming and systems gaps, for which proactive capacity building is warranted and recommended.
新冠疫情大流行对许多行业造成了前所未有的服务中断,包括为有神经发育障碍(NDD)的儿童和青年提供的服务。我们研究了服务提供者在疫情期间为这一人群提供支持时的经历。我们召集了五组焦点小组,共有 24 名服务提供者为有 NDD 的儿童/青年及其家庭提供支持。研究结果突出了服务提供者观察到的大量服务变化和挑战。服务关闭和项目交付的修改导致了虚拟服务的快速采用和项目交付的减少。服务提供者面临工作量增加、个人疲惫和“精疲力竭”以及工作中的新层次冲突,但几乎没有机会和支持来进行自我保健。除了挑战,还出现了新的学习和成长,组织之间的合作更加密切。疫情期间服务提供方面的紧张局势暴露了计划和系统方面的差距,因此有必要并建议进行积极的能力建设。