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对新冠疫情对神经发育障碍患者及其家庭影响的定性研究

A Qualitative Examination of the Impact of the COVID-19 Pandemic on Individuals with Neuro-developmental Disabilities and their Families.

作者信息

Nicholas David B, Mitchell Wendy, Ciesielski Jill, Khan Arisha, Lach Lucyna

机构信息

Faculty of Social Work, Central and Northern Alberta Region, University of Calgary, 3-250, 10230 Jasper Avenue, Edmonton, Alberta T5J 4P6 Canada.

Centre for Research on Children and Families, McGill University, Suite 106, Wilson Hall, 3506 University Street, Montreal Quebec, H3A 2A7 Canada.

出版信息

J Child Fam Stud. 2022;31(8):2202-2214. doi: 10.1007/s10826-022-02336-8. Epub 2022 Jul 14.

Abstract

Individuals with neuro-developmental disabilities (NDD) have been profoundly affected by the COVID-19 pandemic. Based on focus groups with 24 service providers supporting this population, using an Interpretive Description approach, we examined perceived impacts of the pandemic on individuals with NDD and their families. The results highlight pandemic-related experiences which include: service reduction, the need for financial supports, relying on natural supports, and school-related challenges. Interruptions in services have resulted in intensified mental health issues for individuals with NDD and family caregivers, with particular concern for those with added social determinants of health-related barriers. Mitigating factors have also emerged, such as resilience and technology utilization to facilitate communication. Recommendations for resource flexibility and sufficiency as well as navigational support are offered.

摘要

患有神经发育障碍(NDD)的个体受到了新冠疫情的深远影响。基于对24名为这一群体提供支持的服务提供者进行的焦点小组讨论,我们采用解释性描述方法,研究了疫情对患有NDD的个体及其家庭的感知影响。结果突出了与疫情相关的经历,包括:服务减少、对财政支持的需求、依赖自然支持以及与学校相关的挑战。服务中断导致患有NDD的个体及其家庭照顾者的心理健康问题加剧,尤其令人担忧的是那些存在与健康相关的社会决定因素附加障碍的人。缓解因素也已出现,例如韧性和利用技术促进沟通。我们还提供了关于资源灵活性和充足性以及导航支持的建议。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7a88/9281199/6d80b26e4b68/10826_2022_2336_Fig1_HTML.jpg

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