Early Childhood Education, Ryerson University, 350 Victoria Street, Toronto, Ontario, Canada.
Health Soc Care Community. 2010 Jul;18(4):369-77. doi: 10.1111/j.1365-2524.2009.00907.x. Epub 2010 Feb 18.
Children, as major stakeholders in paediatric hospitals, have remained absent from discussions on important healthcare issues. One critical area where children's voices have been minimised is in the planning for future pandemics. This paper presents a subset of data from a programme of research which examined various stakeholder experiences of the severe acute respiratory syndrome (SARS) outbreaks of 2003. These data also generated recommendations for future pandemic planning. Specifically, this paper will examine the perspectives and recommendations of children hospitalised during SARS in a large paediatric hospital in Canada. Twenty-one (n = 21) child and adolescent participants were interviewed from a variety of medical areas including cardiac (n = 2), critical care (n = 2), organ transplant (n = 4), respiratory medicine (n = 8) and infectious diseases (patients diagnosed with suspected or probable SARS; n = 5). Data analyses exposed a range of children's experiences associated with the outbreaks as well as recommendations for future pandemic planning. Key recommendations included specific policies and guidelines concerning psychosocial care, infection control, communication strategies and the management of various resources. This paper is guided by a conceptual framework comprised of theories from child development and literature on children's rights. The authors call for greater youth participation in healthcare decision-making and pandemic planning.
儿童作为儿科医院的主要利益相关者，在重要的医疗保健问题讨论中一直缺席。儿童的声音在一个关键领域被最小化，这个领域是未来大流行病的规划。本文介绍了一个研究项目的部分数据，该项目研究了不同利益相关者在 2003 年严重急性呼吸系统综合症（SARS）爆发期间的各种经历。这些数据还为未来的大流行病规划提出了建议。具体来说，本文将考察加拿大一家大型儿科医院在 SARS 期间住院的儿童的观点和建议。从包括心脏科（n = 2）、重症监护室（n = 2）、器官移植（n = 4）、呼吸内科（n = 8）和传染病科（诊断为疑似或可能 SARS 的患者；n = 5）在内的多个医疗领域，对 21 名儿童和青少年参与者（n = 21）进行了访谈。数据分析揭示了一系列与疫情相关的儿童经历以及对未来大流行病规划的建议。主要建议包括有关心理社会护理、感染控制、沟通策略和各种资源管理的具体政策和准则。本文以儿童发展理论和儿童权利文献为指导框架。作者呼吁让更多的年轻人参与医疗保健决策和大流行病规划。
