Am J Hum Genet. 2022 Jun 2;109(6):979-980. doi: 10.1016/j.ajhg.2022.05.007.
Long-standing ethical principles for genetics research help respect and protect research participants, and they are especially important for preventing harm to marginalized or vulnerable populations. Recent reports allege that several genetic studies conducted in China might not have secured individuals' consent for their participation freely and without coercion. These reports reinforce the need for ASHG to articulate expectations that scientists worldwide abide by universal ethical standards for biomedical research and to update our own policies and practices, including updating journal instructions to authors and expectations for content submitted to ASHG's Annual Meeting program.
长期以来，遗传学研究的伦理原则有助于尊重和保护研究参与者，对于防止伤害边缘化或弱势群体尤为重要。最近的报告称，中国进行的几项基因研究可能没有确保个人自由、非胁迫地同意参与。这些报告强化了美国遗传学会阐明的期望，即全世界的科学家都遵守生物医学研究的普遍伦理标准，并更新我们自己的政策和实践，包括更新期刊对作者的说明和对提交给美国遗传学会年会计划的内容的期望。
