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Acta Paediatr. 2021 Jan;110(1):194-196. doi: 10.1111/apa.15636. Epub 2020 Nov 6.
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Alone With the Kids: Tele-Medicine for Children With Special Healthcare Needs During COVID-19 Emergency.与孩子独处:COVID-19疫情期间为有特殊医疗需求的儿童提供的远程医疗服务
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New clinical needs and strategies for care in children with neurodisability during COVID-19.新冠疫情期间神经残疾儿童的新临床需求与护理策略
Dev Med Child Neurol. 2020 Jul;62(7):879-880. doi: 10.1111/dmcn.14557. Epub 2020 May 2.
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Global Telemedicine Implementation and Integration Within Health Systems to Fight the COVID-19 Pandemic: A Call to Action.全球远程医疗在卫生系统中的实施和整合,以抗击 COVID-19 大流行:行动呼吁。
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家长对 COVID-19 大流行期间儿童神经发育障碍远程康复的满意度。

Parents' satisfaction of tele-rehabilitation for children with neurodevelopmental disabilities during the COVID-19 pandemic.

机构信息

Childhood and Adolescence Neurology and Psychiatry Unit, ASST GOM Niguarda, Piazza Ospedale Maggiore 3, Milan, 20162, Italy.

Maternal and Infantile Department of Pediatrics, ASST GOM Niguarda Milano, Piazza Ospedale Maggiore 3, Milan, 20162, Italy.

出版信息

BMC Prim Care. 2022 Jun 7;23(1):146. doi: 10.1186/s12875-022-01747-2.

DOI:10.1186/s12875-022-01747-2
PMID:35668377
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9170348/
Abstract

BACKGROUND

The use of tele-rehabilitation in children was limited before the COVID-19 pandemic, due to culture, technology access, regulatory and reimbursement barriers.

METHODS

The study was conducted according to the CHERRIES (Checklist for reporting results of internet E-surveys) guidelines in order to provide quantitative and qualitative data about experience of patients with disabilities and their caregivers during Phase 1 of the COVID-19 pandemic, and their level of satisfaction. An online survey was developed using Google Forms and sent via email. The outcome measures were rated using a 5-point Likert Scale. Two additional open-ended questions were used to collect qualitative data.

RESULTS

One hundred twenty-eight out of 261 families responded to the survey: 80.5% of the caregivers reported they were satisfied with the tele-rehabilitation. More than a half (53%) of the families reported a high level of satisfaction with the involvement they received in defining and sharing of rehabilitation goals.

CONCLUSIONS

The implementation of telehealth during the COVID-19 lockdown has allowed us to gain more information about the potential of tele-rehabilitation, and resulted in an excellent satisfaction of caregivers. With appropriate education and consistent models of care, an increased use of telehealth may provide advances in remote patient care.

TRIAL REGISTRATION

Not applicable.

摘要

背景

在 COVID-19 大流行之前,由于文化、技术获取、监管和报销障碍,远程康复在儿童中的应用受到限制。

方法

该研究按照 CHERRIES(互联网电子调查结果报告清单)指南进行,以提供有关残疾患者及其护理人员在 COVID-19 大流行第一阶段的体验以及他们的满意度的定量和定性数据。使用 Google 表单开发了在线调查,并通过电子邮件发送。使用 5 点李克特量表对结果进行评分。另外两个开放式问题用于收集定性数据。

结果

在 261 个家庭中,有 128 个家庭对调查做出了回应:80.5%的护理人员报告说他们对远程康复感到满意。超过一半(53%)的家庭报告说,他们对参与确定和分享康复目标的程度非常满意。

结论

在 COVID-19 封锁期间实施远程医疗使我们能够更多地了解远程康复的潜力,并使护理人员非常满意。通过适当的教育和一致的护理模式,增加远程医疗的使用可能会为远程患者护理提供进展。

试验注册

不适用。