Gillings School of Global Public Health, Carolina Population Center, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
Health Sciences library, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
Stud Health Technol Inform. 2022 Jun 6;290:902-906. doi: 10.3233/SHTI220210.
Digital health information systems are quickly replacing paper systems worldwide. This study examined scholarly work reflecting how ethical considerations for health information systems (HISs) have evolved over time, with particular interest in the contributions from low- and middle-income country (LMIC) institutions. We systematically searched four research databases for terms related to HISs, ethics, and LMICs; and identified 601 relevant articles published from 1975 through 2019. The included publications were produced by 1,000 authors from more than 700 institutions. However, only 30 publications were co-authored by researchers from both an LMIC and a high-income country (HIC). Most publications pertained to data security. There is an acute need to address a wider array of HIS ethics topics, including those that may be unique to LMIC resource constraints. We recommend more collaborations between LMIC and HIC institutions to address the full range of HIS ethical concerns in LMICs.
数字健康信息系统正在迅速取代全球范围内的纸质系统。本研究考察了反映健康信息系统（HIS）伦理考量随时间演变的学术成果，特别关注来自低收入和中等收入国家（LMIC）机构的贡献。我们系统地在四个研究数据库中搜索了与 HIS、伦理和 LMIC 相关的术语；并确定了 1975 年至 2019 年期间发表的 601 篇相关文章。这些纳入的出版物由来自 700 多个机构的 1000 名作者撰写。然而，只有 30 篇出版物是由来自 LMIC 和高收入国家（HIC）的研究人员共同撰写的。大多数出版物涉及数据安全。迫切需要解决更广泛的 HIS 伦理问题，包括那些可能因 LMIC 资源限制而特有的问题。我们建议 LMIC 和 HIC 机构之间进行更多合作，以解决 LMIC 中 HIS 伦理问题的全部范围。
